Hey fellow T1D Nation fighters and JDRF advocates,
~ This post is about feeling as though individuals between with T1D between the approximate ages of 18-25 are often forgotten about and do not have the same opportunities/resources as other ages do ~
~ About Me: ~
My name is Elyse. I am a type 1 diabetic who is 20 years old and currently living in Minnesota. I was diagnosed with T1D overnight between May 16th-May 17th, 2005 when I was 5 years old.
~ Background: ~
Lately I’ve been getting asked, “managing your T1D must be easy now… you know, since you’ve had it for so long?” Depending on the day, if I am in an optimistic mood, I can see the persons reasoning for having that thought. Although, often times I correct them and tell them how I disagree with them.
- Just because I have had this auto immune disease for a “long” time, does not mean it takes any less of an emotional toll on me.
- It does not mean I have a perfectly programmed pump, know how to adjust my basal rate by the exact increments, or even have a “healthy/stable or steady” HB1AC.
- Everyday is a new day and will effect my (the individual with T1D’s) BG differently. The individual will never know what is to come. Insulin is NOT a cure. It is a treatment.
It’s been getting harder and harder as I get older to let go of others ignorance and lack of education in regards to T1D. I wish the JDRF offered a better resource or group internationally for people who are +18.
I was in need of comfort and support the other day and found hope in the old T1D support books I was given from the JDRF when I was diagnosed in 2005 from the hope package/care team. One specific part I remember was the T1D bear, “Rufus.” I wanted to purchase another one, since mine ripped, and it hurt to see they only allowed T1’s who are 16 and under to request a care/hope package. It feels as though they’re not validating the other older people who are diagnosed and maybe find comfort in similar items. Additionally, has anyone noticed that for the young diabetics, they offer the “Youth Ambassador Program?” For those under 18 years old.
Long story short, I feel as though I am currently stuck in the time/age group where the JDRF doesn’t validate how hard it is for people our age. I feel like most primarily focus on youth/new diagnosis’s, diabetics going to college, or diabetics and pregnancy… they leave out the entire age group of diabetics and moving out, finding jobs, applying for internships, etc. not to mention all other external and internal struggles.
Pardon my rant. I could really use feedback and others opinions.