i was diagnosed a year and 26 days ago does that count as newly diagnosed?anyway im new to juvenation im 14 and looking for more type 1 diabetic friends.
My son is 10, maybe you guys can chat?
Hi I am Haley. I am 15 years old. I get what you are going through it has almost been a year for me living with t1d. I wouldnāt mind texting or snap chatting whatever way is easier for you to communicate.
hi @haley4 I am a volunteer moderator here - some of these threads are very old - this one in particular is 9 years old and so I do not think you will get a reply. Anyway I hope you find some teens to communicate with, did you try to look up your JDRF chapter? Sometimes they have additional resources, you can look here for T1N resources https://www.jdrf.org/t1d-resources/ and you can try the JDRF āChapter Finderā here https://www.jdrf.org/chapter-finder/
good luck!
Iām hoping our own @bookwormnerd13 sees this as well!
Hi, Haley, and welcome to TypeOneNation! Another teen literally just posted that she was looking for more teens with T1D, too:
And Abby @bookwormnerd13 who Joe mentioned above has a group Snapchat for teens
Let us know how it goes!
Hi. I just replied to her post about looking for teens with T1D. Thanks for letting me know
Ok. Thank you. I didnāt realize. Yes my mom already contacted the local JDRF Chapter. We are waiting to get a reply back.
Thanks for the pings @joe and @srozelle !! Hey @haley4 and @claraanne - I would love to add both of yāall to one of my T1D teen groups! Pm me and we can trade contact info
Abby,
I was dx with T1D when I was 14 (in 1985) and all these years later, Iām curious to know whether the ādiagnosis storyā is different now- hopefully better/more positiveā¦.Iām really interested in the differences between one personās experience at dx vs another and how some people are scared off with language about ācomplicationsā while others are told they can still live their normal lives!
Hi @amymercer . I was diagnosed in 1963, when I was a toddler. My parents are no longer here to ask but piecing together how it went Iām sure my parents got the lecture on possible complications and expected lifespan for us at that time. My mom tried very hard to make sure I ate the right foods. I donāt believe we used the exchange plan or food pyramid, but back then it seemed moms were nutritionists and worked hard to make sure their kids āate healthyā - diabetes or not. As I got older my mom started equating food choices with my long term diabetes health, and at some point my doctor introduced the ācā word. I want to say I was around 10 when he did but Iām not sure.
I have a theory that doctors have to invoke the term as part of their due diligence; but now I imagine those possibilities are more remote and less likely, since we have tools and knowledge we can use to keep them at bay. We need to know theyāre there but we can do what we can to prevent them - and treat them if they do happen.