I'm 19 and was dx with diabetes in Dec. 2009. Today I was diagnosed with PCOS. I was just wondering does anyone else have this? How do you treat it?
I had never heard of it before, and my endo said it was surprising that I have it because I am not overweight and I do not have insulin resistance (I am actually very very sensitive to insulin). She said I will just have to go on an oral contraceptive. If you have anything information you could share, please do.
I also have PCOS and was just recently diagnosed. I did a lot of research on PCOS after I was diagnosed with it, and here is what I found. A lot of research is suggesting that PCOS is also an autoimmune disease like T1. There is also a MUCH higher incidence of PCOS in Type 1 Diabetic women. This is because, as T1's, we frequently use higher doses of insulin than a non-T1 person would use (for example, to bring down a high blood sugar.) Having large amounts of insulin in the body messes with our sex-hormones and can cause higher-than-normal levels of testosterone, which can cause PCOS. I suspect that a lot more T1 have PCOS and don't even know it. I also think I've had it for years, because I was diagnosed with ovarian cysts in the past, and I've always had unpredictable and very painful periods.
Treatment-wise, I've heard of several different options. There aren't any PCOS-specific drugs out there, but the birth control should help to bring your hormones back where they should be.
I am not exactly sure. I rarely have had my period (I had it for the first time 6 years ago, and only get it every 3-6 months), so my endocrinologist did some blood tests and I said because of my hormone levels it is very likely that I have it... I was just put on oral contraceptive.
To me it seems like many women with it only experience irregular periods. If you are concerned, then I would definitely just bring it up to your endocrinologist or gynecologist. I read somewhere that 5-10% of women 12-45 have PCOS, so it's certainly not uncommon.