My 3 yr old son was just diagnosed with T1D. This all so new and scary for us. Please any advise would be great!! Thank you!!
Not much advice for you…listen to your community nurse, take each day as it comes…you will take it out on your loved one but work together…I’m right where you are just a couple of weeks on Still crying, still think its unfair, still don’t want to jab my baby girl…but have to to make sure our baby lives a long and complication free life xx
I fully understand what you’re going through. My daughter was diagnosed last year after her 3rd birthday, and we have just made it one year😥.so I have been where you are at and still going through some new things…STAY STRONG!!
Best advice I can give… cry when you need to so that you’re stronger when you have to be! 2nd piece is do NOT be afraid to blow your Dr.'s phone up. They get it! If they don’t then switch immediately and go with someone through Children’s if possible. We have an 8 year old son who was diagnosed at 15 months. Some days I want to scream and yell and cry. Others, I just know there are no options (currently) and do the absolute best we can. It’s hard to learn but comes very quickly. Our 11 year old daughter was just (3 weeks ago) diagnosed with Hashimoto’s Disease and Celiac. We went through the same range of emotions again. But now we are all over it! It truly becomes second nature with time. Once they can go on a pump of sorts, life is so much simpler. Hang in there and we are ALL here when you want to vent or have questions! Sending you hugs, loves and muffles for screams
I know this was posted a couple months ago, but my son is 2 (turning 3 next month) and he was diagnosed at the end of January. My best advice is to not beat yourself up if you don’t get it right! I have spent many nights sobbing because, at some point during the day, my son’s blood sugar unexpectedly spiked or dropped and I felt like a constant failure. But it’s a learning experience for EVERYONE involved! And don’t hesitate to ask for help. No one is perfect. You will get frustrated and angry and that’s okay! Just ask for help and take a break to regroup. Good luck!
I just found this group and joined tonight, so I’m sorry that this is a little late, but we can always use support and know that we are not alone. My daughter was diagnosed right after she turned 2, and Aug. 29th will be our two-year-diaversary. I agree with what has been said before - you must be able to call or email your doctor 24 hours a day and know that he/she will get back to you in a timely manner. We lucked out with my daughter’s doctor, but I have heard of other parents who only talk to their doctors every 3 months at endocrin appointments. Be your son’s advocate. Remember that it is not anyone’s fault that your son has T1D. Be there for your partner, and hope that she/he will be there for you too. You will really need each other, even just for hugs. We keep a journal in a composition book (we are on #5 now), and we write down every BG check, every food item for every meal and its carb count, and all exercise. I know it’s tedious, but I’m not a stay-at-home mom, so this journal travels with my daughter and everyone who takes care of her knows to write everything down. We have found it very useful in determining WHY she is having highs or lows, and when I talk to her doctor I can pinpoint specific food items and/or exercise as the cause for an off number. Her doctor loves to look through it at our 3 month endocrin appointments. The last piece of advice is to remember that your son is a child first, and a diabetic second. My mother helps to watch my daughter while we work, and at the beginning she refused to let my daughter play outside or take her places that they used to go because she was scared something would happen. I took my mom with me to our first follow-up visit one month after diagnosis, and a nurse there who is T1D talked with my mom. Now they have lots of fun and my daughter is as normal of a 4-year-old as she can be! I hope that after two months, things are getting easier for you and your family!