http://www.facebook.com/#!/group.php?gid=280698979764
Personally i agree.
This has come up a bunch. Me, I just try to explain to anybody who will listen the difference. And yes I know myself I can get a little not happy watching type 2 getting attention (media and such). But that's life!!! Also, there is a mini war(lack of better word) sort of, between type 1 & 2. Why??? nature of people I think.
When I think about it, I keep flashing on an old Star Trek, the one where the people of the planet are at war because they are half black and half white. But some have white on the left side or something like that and this is the cause of the war. Hey wasn't there a Dr Suess book about belly buttons with the same theme!!!!! LOL
As far as renaming Type 1 diabetes, I voting for Club 1 HaHa
Funnily enough I just saw that particular Star Trek Episode the other day! All those endless reruns.
But yeah there has to be a way to distinguish us type 1s and with a name that is acceptable to all parties. Any latin scholars out there to come up with something. My 3 years of high school latin were too long ago! Although I can still remember the words to Jingle Bells in Latin! LOL-strange what the brain retains!
people have been whining about changing the name for as long as i can remember..it's not gonna happen.
I'm with batts. The horse has already way left the barn on this one. Maybe focus on something more realistic. I understand the concern, but ...
[quote user="Batts"]
people have been whining about changing the name for as long as i can remember..it's not gonna happen.
[/quote]
agreed
[quote user="C"]
[quote user="Batts"]
people have been whining about changing the name for as long as i can remember..it's not gonna happen.
[/quote]
agreed
[/quote]
Maybe if you had to go without insulin for almost two days because your new insurance consider it experimental treatment, and not proven to work, you'd be "whining" too.
I personally don`t care whether the name changes or not. I don`t see it having a big effect on my life or on the development of new research for Type I. There are many people that don`t know the difference between Type I and Type II, and I don`t think changing the name is going to make that many people take the time to find out more about Type I. In fact, it could even have a negative impact on fundraising efforts. Many people that see a fundrasing campaign for `diabetes` may contribute because they know somebody who has Type II. However, if the confusion bothers you, please do whatever you can to get the name changed.
I dont think it is a good idea to change the name. I think people should just spend more time and energy on educating the public on the differences of the two.
Agreed. Education is key.
I know that especially with all of the health care reform debates I got attacked personally by several people I knew, telling me that if I had just chosen to take care of myself and not eat so much unhealthy food when i was a kid, I would be fine. Therefore, I had no right to ask for health care reform (this being said to me, who hasn't had insurance for several months... but thats another issue).
It was really hard to buck up and become the educator in instances like this, but thats what has to be done sometimes. I think the JDRF just needs to hire some really flashy, advertising gurus and brand the hell out of Type 1 haha. It is getting rather tiring explaining the difference every other day.
I am new to this whole site, but I agree about changing the name - even in this day of everybody accessing the web for everything, many people still call Type 1 "Juvenile Diabetes" - and I was diagnosed with Type 1 at age 27! WE may have a less common type of diabetes, but it is a valid condition all by itself, not a sub-group.
My other serious peeve is being called a Diabetic - no, thank you. I happen to be a person who HAS diabetes, but, please, it doesn't define me!
If there was a name change i think i would hate it just a little...mostly because i have a fun time explaining to people the difference....well not explaining but gettin a baseball bat and smackin people across there head with it till they got the difference...but yea conversations wont be as interesting if they knew already
I think that if there was a name change, espcieally if it was changed to something that doesn't sound as tragic, then I might be a bit more comfortable with explaining what T1 is exactally. Because right now, half the people in my school know that shouldn't and when they question me, I have to ingnore them or walk away because I'm afraid I'll burst into tears right in front of them.
as far as the T1, T2 war, T1 is just as important as T2 and can lead to threatening effects if not treated! so we should be just as concerning to people as T2 PWD's are!
I think everyone has valid points. Its surprising that many health professionals mix up the two and have limited understanding of the difference. If I were reading this right now, I would guffaw but its true! I've had doctors say "oh they changed from type 2 to type 1" simply based on the start of using insulin.
One thing to keep in mind is that though there are many people with type 1 diabetes, it is vastly overshadowed by type 2. Approximately 1/2 to 3/4 of the patients I admit to the hospital have type 2 diabetes. Very rarely do I see type 1. The advantage of simply calling it "diabetes" is that the public awareness that is increased for "diabetes" will help us too. Its very difficult to rally a nation for a disease that affects so few people. But for one that is widespread, a new colored bracelet emerges and they have a "wear ______(fill in the blank with a color) day" for that disease. Look at heart disease in women. Its gained a tremendous amount of interest and support and now there's wear red day and red dress pins and support the cause everywhere. The same is coming up for colon cancer (their color is blue). Of course I think pink started the whole trend in dedication and united effort against a disease. You see, there are a large number of heart diseases included in the red campaign, locations and cause for colon cancer for the blue campaign, and types and behavior of breast cancer that are covered by the pink campaign.
My point is that if there is generalized awareness of the disease, it will help to emphasize the importance of the disease overall.
United we stand, divided we fall. I think going at it with all types (not just type 1 and 2, but the iatrogenic, the genetic, and the mixed picture).
I think a name change would clear up a lot of confusion not only in the general public, but in the medical community as well.