Hi I’m new here. I was diagnosed with t1d 02/06/16, just two days before my sixteenth birthday. The first year was a breeze. I checked my blood glucose regularly. I didnt miss insulin doses. My a1c was excellent. I was managing my disease, but that was the first year. It’s been a little over two years now since my diagnosis, and the second year was a trainwreck. I have been in and out of the hospital for dka. My a1c at one point was 13. I rarely check my blood glucose. I’m destructive. I wish I was better with words so I could really express how I feel. I’m 18 at the time of this post; actually typing this from a hosipital bad…dka. I’m not proud. I have lost confidence. I want to be healthy and happy
Hi Bryce @PhatGingerCat,
So sorry to hear of your episodes of DKA and resulting hospitalizations. I have only been in hospital once with DKA - and that name “DKA” hadn’t yet come into use, and that was in 1957 on my 16th birthday when I was diagnosed with diabetes - blood sugar reading when we got it the next day was “greater than one thousand”. But welcome to TypeOneNation and I hope that you are able to find inspiration and motivation here - we tend to share successes and times when we could have done better, but we are ALL learning.
I too think I “did pretty good” [not to be judgmental] in my first couple of years but then lost it all when i went to college - it took about another eight years before I was able to really accept this horrible condition and get myself turned about. I can’t say what my A1c was because there wasn’t any such scale - 15 to 20 years after I was diagnosed i participated in the glycosylated hemoglobin study that developed HbA1c and fingerstick BG Meters were still off in dreamland.
A suggestion for you, set yourself some goals, something positive and work step by step to achieve. I’ve found that rthere isn’t anything in life that PWD [Persons With Diabetes] can not achieve because we can manage our individual cases of diabetes to fit our schedules and goals. Right now we have plenty of tools to help us keep glucose levels in ranges that enable clear thinking and all conceivable activities. After having to drop out of college I went to work, ignoring diabetes, but then after years of feeling “horrible” i got a grip - enrolled in college nights while working and raising a family [maybe a new daughter awakened me], graduated with honors, got a different job and pushed myself to achieve until being named President/Ceo of a significant national corporation. Retired the first day of my 70th year and now enjoy sharing my knowledge as a volunteer.
Good luck to you Bryce [yes I’ve had good luck], and stay in touch.
I’m sorry Bryce. We all have bad days. You just can’t let that stop you from the next day. I’m not going to lie to you and say this is a breeze. It’s not, but there are many options that are available to you. How about a pump? Or a CGM? You may need to speak to a new doctor? Or try meeting with a nutritionist. ( See, options.) I know it’s not easy to get your numbers under control. But I promise you, that you will feel so much better when you do! Let me know how your doing.
You can do this!