So why is it that ANIMAS is geting the Funding for a artificial pancreas ok so its a pump and a CGM on u to u. WOW so why not more funding for a CURE for DIABETES. I think i speak for all type 1's i dont think we want to have thing on us(pump and a CGM) up to us any more.We want to be out there doing so much more insted of doing all these things that we have to do. Diabetes mybe apart of us but i would rather put the money if i had to i would put it towereds a cure I mine really think about it here more things on your stomik i would rather not have any thing there. I understand that is would help better controll but i would rather notput anything on any more or store any thing any more.
if money only went into research for the CURE to diabetes, and not into IMPROVEMENT of drug delivery and blood glucose testing, then we would still be boiling glass syringes and hand sharpening no 7 bore needles. We would also be pissing into test tubes and boiling it with benedicts solution to find out how much sugar was in it. THINK ABOUT IT. I have for the last 31 years dealing with this.
who cares if animus or medtronic or smiths or $##@$% is getting cash to screw around with a new product?
if they come up with anything that SUCKS LESS than what we have now, we will surely benefit in some small way. My one touch ultra is a heck of a lot better than clinitest. and if you don't know what clinitest is you CAN THANK YOUR LUCKY STARS.
do you think that major drug companies are stopping vaccine research because j&j got a few bucks to connect a CGM with a pump? hmmmmmmm. well if nothing else it sure makes a person wonder.
[quote user="Joe"]
if money only went into research for the CURE to diabetes, and not into IMPROVEMENT of drug delivery and blood glucose testing, then we would still be boiling glass syringes and hand sharpening no 7 bore needles. We would also be pissing into test tubes and boiling it with benedicts solution to find out how much sugar was in it. THINK ABOUT IT. I have for the last 31 years dealing with this.
who cares if animus or medtronic or smiths or $##@$% is getting cash to screw around with a new product?
if they come up with anything that SUCKS LESS than what we have now, we will surely benefit in some small way. My one touch ultra is a heck of a lot better than clinitest. and if you don't know what clinitest is you CAN THANK YOUR LUCKY STARS.
do you think that major drug companies are stopping vaccine research because j&j got a few bucks to connect a CGM with a pump? hmmmmmmm. well if nothing else it sure makes a person wonder.
[/quote]Joe, I agree with you 100%. And I do remember clinitest.
Joe,I agree too !
joe, your anger made me laugh. not because you're angry, but because i feel the same way and didn't know how to say it :o) thanks!
Joe I to agree 100 thousand percent ... well said!!!!!
Well Joe I have a different spin on this. I have been diabetic for 37 yrs so I certainly remember clinitest. The problem with all these new devices is it is getting cost prohibitive. When I was first diagnosed insulin was $5-$10 now it is way over $100, syringes were cheap and so was clinitest. Now we have all these modern devices and we are in a health care crisis. I read recently that a type 1 diabetic on average cost $15,000 to treat each year. I know I don't cost that much but I can easily see how it could. I am right now wearing $7500 worth of medical equipment (pump + CGMS). One or two trips to the hospital plus all the supplies I need I can easily see hitting that number and I don't even have any complications. It took me years before insurance would pay for a pump because I was "too well controlled" and after a couple years of trying I was finally approved for CGMS last year. Diabetes is getting too expensive to treat! I can only imagine what an AP will cost. I don't even get what the big deal is about an AP is in the first place. It will do what I am already doing myself. I have programmed my cgms to alarm at 60 and 180 and then I will do what is necessary. I don't need a computer algorithm to tell me what to do. So I believe the search for a cure is where all of JDRF money should go. I'd rather have that 8 million that JDRF gave to J & J go to a promising upstart scientist than to fund a profit center for a major corporation.
Joe, thanks so much for saying this! I totally agree.
i would rather have the artificial pancreas than money towards a cure. a cures gonna take a while and possibly wont even be in our lifetime so i'd rather have this and it would almost be like not having diabetes at all. that would be way better!
It is sad to see so much negative energy going toward JDRF and the AP project. Particularly since it appears that most doing the bashing are not aware of what has been accomplished and discovered so far in the AP project.
The JDRF efforts are immense and quite diverse. Many projects that have been funded have produced technological and biological advances that make the AP, stem cell to islet cell production, autoimmune management and the biology of how the islet cell and the supporting bio-systems interact.
It sounds much like the frustration, fear and lack of awareness have gathered together to guide the emotions for the T1Ds, parents and family who may not yet understand what is happening to get us a cure for this pain in the ass condition.
Please go to the JDRF site and see what is happening and what has been accomplished.
I say, thank you JDRF and all those who are getting us closer to a cure! I do remember how far we have come in the last 40 year I have dealt with this challenge. Today there tangible things leading to an easier life, controlling the onset and autoimmune attack and an artificial pancreas to help us live a better life to name a few.
Here is a list of legitimate things to bash:
- A study was published by a PhD in Toronto, Canada, promoting the fact that using Insulin aspart and insulin glargine is no more effective for treading diabetes than regular insulin. This is may have a direct impact on insurance companies not paying for anything but regular insulin.
- A Kaiser Perm policy in OR is now limiting the number of strips that will be prescribed to T1Ds, no matter what the danger to the patient. The change is being made to the drug formulary. The name is Dr. Sean Eric Jones.
- The dollar to patient ratio for research funding for T1D is low, compared to more "popular" diseases.
- Specific comprehensive patient education is not provided to new T1Ds and the ongoing support is muddled with the other diabetics, despite the unique challenges of T1D.
- The new ADA, Amendment 2008 Act protect diabetics in the workplace and in public and far to many Ds are still told that the cannot carry out "normal" life activities such as testing BG at work or at school.
Let focus our energy to make a difference in for all Ds!
Sorry for the ranting.