My name is Courtney, and I’m starting to write a book about growing up with a sibling who has Type 1 Diabetes and I’d like to talk to other people who have siblings living with Type 1 Diabetes.
The book will be about my experiences as a child, teenager, and young adult, but I also want to talk to others to get an idea as to what they may find helpful in the book, or if they’ve encountered similar experiences.
Hi Courtney - what a neat idea! I’m the sibling with diabetes so can’t contribute, but I do recall being out as a teen and hearing a girl tell her friends, in a very frustrated the of voice, “Oh no - I’ve got to get my sister home - if she’s late for her insulin my mom will kill me!” Decades later I still recall that conversation.
Unfortunately my sister can’t contribute - she is developmentally disabled and get level of disability prevents her from writing more than the most basic sentences. Actually I’ve often felt that having diabetes got me attention I would not have otherwise, but that’s a different story.
Congratulations in advance on your work.
Your idea is so wonderful. I have a younger brother who has been living with diabetes for the past 10 years- 11 years coming up in February 2021. I would love to share parts of my story with you and I would appreciate hearing your story as well. Feel free to private message me with more information. Or if you would like I could reach out to you via private message.
Hi Courtney, I’ve had T1 for 64 years. When I was about 15 or 16 my Dad & I ate bkfst together at 5:30 AM. One AM he told me that my youngest sister by 10 years had become diabetic as well & that my Mother had been up all night crying. The news hit me like a ton of bricks. My Mother crying all PM told me that T1 wasn’t just inconvenient but a terrible disease. 1st time I figured that out, duh!
As a teenager & young adult I was more concerned about my sister’s health than my own. Now at ages 69 & 59 I remain concerned about her but refrain from being paternalistic. I get anxious when I receive texts from her about health issues. Also seems at our ages that all health issues are related to T1 in one way or another.