My daughter is 4 and her first pump will be here Monday. She has had diabetes for over a year now and the shots are just getting to be too much for her. Is there any suggestions from people that have young children on the pump already? She is getting the ping. where is the best site location on someone this small? she would not let me do her shots in her stomach… will the pump site feel different if I place it on her stomach/side area? where is the best place to order accessories from? (cases, bags etc.) is this going to be a huge change from shots as in the amount of supplies that will need to be in her bag? is there anything that I should ask her doctor before we get started? what are some issues that you had with the pump to begin with? I am really excited about this change for her but I want to do this right and get all the info I can
I myself have diabetes and have the One Touch Ping pump. I have found that, for me, the hips and arms are great places to put sites. I really like it in my arm, for it gives my hips a break and feels out of the way. Do note that if you plan to put sites in your daughter’s arms, you will most likely need to get the infusion sets with the longer tubing so that the pump reaches the site with plenty of room for movement. I have also put a couple Inset 30 s (cannula is at a 30 degree angle in skin) in my legs, and did not mind it there. I had to use the 30 s because I do not have much fat in my legs, and the regular insets would hit the muscle and bend.
When I insert a site, I wipe the area with and alcohol swab and then apply SkinTac (super sticky wipe) before inserting the site. After the site is in, I use UniSolve to remove the SkinTac on the skin around the site (I found that my skin breaks out to extra SkinTac). Also, by taking a deep breath before actually inserting the site will keep the muscles from tensing and the site will not sting much at all.
I have purchased accessories online from Animas, and have purchased bags from various websites (just search for “insulated diabetes bags” or something alike depending on what type of bag you would like). I think that your daughter will love the pump, for there is typically only one “poke” in three days, rather than about 15 “pokes” in three days.
I hope this helped and good luck!
You don’t have to make the pump complicated. I do carry an extra bottle of insulin and syringe just in case my pump stops working for some reason. It’s happened just a couple times in 12 years. You don’t need a special bag. I use a pocket in my purse or glucose meter case.
Since you only change the pump site every 3 days you can plan it for when you’re home.
There is a big learning curve with the pump. Try to do it when you have a long weekend or a vacation from school. It takes time to get the base rate (called the basal rate) set and to make sure some of the other settings like insulin duration time are accurate.
For the first week have simple clothes the pump can clip easily to or slide in a pocket. The short tubing will be fine since your daughter is only 4. I disagree about using arms as good infusion sites for kids… they tend to get in the way. The stomach has the best absorption and that’s why it’s the most popular. But some kids won’t tolerate it. Upper buttocks, hips, and upper thigh are okay but she’ll have to learn not to get catch her underwear on the pump site when using the bathroom. It won’t pull the site out but my hurt a little.
After the sites have been in for a minute you usually can’t feel them at all. If she has a site that hurts more than 10 minutes later, I’d put it in somewhere else. It’s really important to be adventurous and use as many sites as possible. I am not quite 5’2" and I have to use every possible site so my skin doesn’t get used up. For the first couple years I became too reliant on a few favorite spots and my skin stopped absorbing insulin there. But after I gave them a break for 6 months those areas recovered and I’ve been careful to rotate more.
I was diagnosed at 4 and did shots for the first 25 years. I’ve pumped for more than 12. Pumps are WAY better than shots and I’d never willingly go back to shots. Give yourself time to adjust. Pumps aren’t really easier than shots, but the control is so much better and it’s more real life.