I'm sure you know Pueblo a lot better than I do. It looks like there are endocrinologists in Pueblo, but I know the frustration of not having local specialists. I DO have to drive over an hour to get to an endocrinologist. Looks like you've found a resource, though, to get you some help, and that is the main goal. Good luck and keep us posted.
Jessica, it makes me so disheartened to hear that you are having so much trouble with your school nurse. As a teacher, I really hate to hear horror stories about parents not being able to get their children's basic needs met at school. I am so sorry. I hope that the office that you called today responds quickly and in your favor. Please keep us posted on your progress.
Our state, NC, has some of the most comprehensive laws for children with diabetes. We do not have a school nurse at our school (most schools around here share nurses), but we have a lot of caring individuals. My daughter also administers her own shots. The school staff is scheduling a training session for glucagon during their next teacher work day in March.
[quote user="Angie13"]
I'm sure you know Pueblo a lot better than I do. It looks like there are endocrinologists in Pueblo, but I know the frustration of not having local specialists. I DO have to drive over an hour to get to an endocrinologist. Looks like you've found a resource, though, to get you some help, and that is the main goal. Good luck and keep us posted.
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Yes there are some here but I was told they will not take her or are not pediatric Endo's. Also none take my insurance when I did a search from my insurances web site. At first I was told there is only one here and she isnt taking new patients. So it is still stuck in my head there is not one here. I will be asking their new pedi if she knows of one here we can use because its just to hard to drive over an hour away with two other kids with there own set of medical needs but if need be we will.
[quote user="Stanca"]
Jessica, it makes me so disheartened to hear that you are having so much trouble with your school nurse. As a teacher, I really hate to hear horror stories about parents not being able to get their children's basic needs met at school. I am so sorry. I hope that the office that you called today responds quickly and in your favor. Please keep us posted on your progress.
Our state, NC, has some of the most comprehensive laws for children with diabetes. We do not have a school nurse at our school (most schools around here share nurses), but we have a lot of caring individuals. My daughter also administers her own shots. The school staff is scheduling a training session for glucagon during their next teacher work day in March.
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Yeah our nurse is a shared nurse with 7 other schools. Most of the staff is caring and they want to be trained they are just unsure of the laws. So they have no clue what they can make her do and what they cant. Nobody called me back from the office I called this morning. However one of the nurses I emailed from Colorado kids with diabetes did email me back. She thinks this nurse must be misinformed because the school has to provide her with this care. I told her I honestly believe this nurse does not want or care to do her job because she told me she can show me the laws on the matter. I know these nurses I contacted work with school nurses state wide to get them to do their jobs more or less. So hopefully after I call her Monday she will be able to help me more and give me more information on how to deal with this lady.
Hi Jessica, I just pulled my teenage son out of school after having problems at his school. It takes so much energy to handle the diabetes and a teenager, i ran out of energy to fight the school. I will take them on at a later date....I did want to let you know something I have learned about insurance companies. There are usually ways they CAN help you that they don't always advertise. If there isn't a specialist in your area that takes your insurance sometimes you can call the insurance company and request that they make an exception and assign you one closer. As for the strips, if you can get a doctor to write on the prescription that she needs enough strips to test 10-12 or 12-14 times per day the insurance company is more likely to pay for the number of strips. Or endo made us show her on average how many times we test and then she changed the prescription to 10-12. Most of the time they write the prescription for 6-8 or 8-10 tabs per day. Good luck with everything!
jennifer
Thank you Jennifer. I am sorry you are having a hard time as well. My insurance company told me if there isnt one that they cover within 100 miles to call one in my area and ask then to call my insurance and ask to be added so they can see her. As for the strips the script was written for more and when the lady was filling it she said grr they will only cover 200 a month and changed it to 200. So I doubt that will work. Someone else did tell me tho that I can try to get them covered as durable med equipment that means buying them up front and wait for a reimbursement check. I am going to call them about that as well because its tax time I have extra money right now. I dont have credit cards or anything so now is my only chance to do it.
Jessica have you called the office who wrote the script for the strips and told them. They should be able to get a prior auth. to get more strips covered. Worth giving it a shot.
No I didnt even think of it. We are seeing te lady that wrote it on monday so I will talk to her about it.
Definitely ask your office to write for the prior authorization for the extra test strips. The insurance company will almost always say no first, but your dr.'s office should be familiar with this. THere is no reason to not have the number of strips you need.
Good Luck and don’t give up! When I was in school you would not believe the stuff I had to fight for (and it was not even that long ago!) I was told that I would not be allowed to keep snacks with me because they might cause ants so I had to keep them in the office. When my sugar was low I had to ask for permission to leave the class room, find someone to walk me down to the office, test, THEN get my snack! By the time I left elementary school every teacher in the building was trained in giving shots, testing my sugar, giving glucagon and had snacks for me in their class rooms. I had a pretty persistent mom :)
Well we are having the 504 on Friday. I wont back down on the glucagon at all. I got a hold of a nurse who works with schools and school nurses and she told me sadly my city is behind the times when it comes to D. I am trying to get another one of these nurses to come down and sit in on the meeting she might even do some of the training right then and there is the school nurse refuses too. I have not actually talked to here yet tho just the first nurse telling me this second nurse might be able to do these things for me. No clue tho.
Jessica - What insurance co do you currently have if you don't mind me asking? Do you have options for using another company maybe? I would check into the DME (Durable Medi Equip) as well. My daughter's strips and testing lancets are shipped to the house and it's all under the DME portion of the policy. I don't pay anything up front for them either. I know different companies have different guidelines, but it's still worth checking into. I would also definitely ask the prescribing dr to increase your daughter's rx. I'm so sorry for the difficult time you are having with your daughter's school nurse as well. It makes me so sad to hear things like this. My daughter is three and she was diagnosed at the age of 2 1/2 on December 11, 2008. My parents keep her for me during the day, as I am a working single mom but I am so scared of the day she has to start school. I know we have to let them do all the normal things so they don't feel different, but it's still a very scary thing to me right now. Take care of yourself and your daughter. My prayers are with you both.
I really think I need to do more research on and with my insurance company everyone else seems to not have a problem with it maybe I am just not educated enough on this subject. We have Anthem which is BCBS in Colorado. We are seeing her DNE tomorrow and I am going to ask for a bigger RX for them and see if it will work.
I am not looking forward to Friday I know its going to be a head on fight with the school nurse. Verbally of course but if she refuses to do anything I am asking for in the 504 then I will ask for her bosses name and number I will pull out my cell phone and call right then and there for a replacement nurse that is willing to do the job my child needs. I am not asking for anything that is unreasonable.
My daughter is also on BCBS of Florida. I believe it's called the "Health Options" plan. My ex husband carries the insurance for the girls as it's much better than the plan I could get through my job. I remember when Shelby first got diagnosed, I was getting her strips and lancets through the pharmacy and then someone at JDRF told me to check into the auto shipping through my insurance. If I hadn't found that out, I don't know what I would do now. The strips are so expensive and my ex isn't very good at reimbursing for his portion of her out of pocket meds, which is just sad to me.
I will say a prayer for you for Friday too. I know you will be fine. You know what you need to do to take care of your daughter and you are not being unreasonable at all!!! I often wonder about people who seem to be so closed minded and how they would handle the situation if it were their child? I never imagined having a child with diabetes, but I can honestly say it really opens your eyes to many things.
Hang in there Jessica - you are a wonderful mom and your daughter is very lucky to have you!
Way to go on getting this going Jessica.
Keep kool and stand your ground. The ADA (federal law) requires them to accommodate your daughter, just as they would a wheelchair or blind student. Althoug, she does not need that same type of accommodation, she needs to be safe at school and then need to provide the support system to minimize the impact on her learning.
I'll be thinking about you Reily on friday. Hope all goes smooth and the are supportive in the process.
Thanks they changed the time but for a good reason the councilor told me to get ME as much support in there as possible they wanted to change it from friday afternoon to friday morning. The staff at the school really wants to help me its just the nurse holding things back. She keeps telling them I am wrong and she doesnt have to do anything and I am telling them she is wrong and somebody paid for my the district has to do something. I will do my best to keep my cool tho it will be hard this lady pushed my buttons.
Oh and thank you all for your thoughts and support.
Just a though...maybe the JDRF nurse you spoke about can call in for the meeting.
this nurse is just being LAZY. You need to set her straight.. my parents have fought with numerous nurses!
[quote user="sjwprod"]
Just a though...maybe the JDRF nurse you spoke about can call in for the meeting.
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The nurse I talked to wasnt a JDRF nurse she was from colorado kids with diabetes. I talked to a parent advocate from JDRF. The one nurse referred me to another one closer to me and I have yet to hear from her. So it looks like I just might be on my own for this 504 BUT I wont sign anything unless I am happy with it and will call for another one and have some back up with me if that is what it takes.