Okay, you may already be way ahead of me on this (or have crossed it off the list for a bunch of reasons I didn’t imagine) but here is what I was thinking:
How cool would it be to do a study of the Juvenation population asking about the following:
· A1C’s pre-Juvenation vs. Post Juvenation
· Have you found you are paying more or better attention to your diabetes since joining the site
· Which if any of the following do you feel like you’ve improved since joining:
o Your knowledge about available treatments
o Your ability to make use of the tools you are currently prescribed
o Your overall emotional health with regard to your diabetes
o Your sense of involvement in the diabetes community
o Your sense of belonging / being more mainstream
· How often were you focused on good diabetes control before Juvenation
o < 1x per day
o Only thought about it 1-5 times per day
o More than 10x per day – or most of the day – every day
· How often were you focused on good diabetes control after Juvenation
o < 1x per day
o Only thought about it 1-5 times per day
o More than 10x per day – or most of the day – every day
· On a scale of 1-10, how big a difference do you think this sort of a support group has made in your care and/or awareness?
I don’t know- it was an off the top of my head idea… What do you all think?!?!?!? Any questions you think should be added/deleted?
If JDRF wanted to open Juvenation up to a statistical study, would you be willing to sign up for it? Why or why not???
I was thinking about this because we have such a wonderful and diverse group here, and I can’t help but suspect the benefits are both emotional and clinical and I was thinking it may be really neat to see that published in some sort of quantitative analysis… Then again… I could just be nuts!
Cheers!
A-D