Been doing this since 1964 and have no complications. My biggest problem has been with low blood, several near death ones. Have lived all my life on sail boats most of them having no inboard engine. Also have never had any type of refrigeration and most of that time has been spent in the Bahamas. Just remember the only reason you are still diabetic is because of the massive profits that are gained from anyone with a chronic condition, sad but true.
Have had type 1 since 1964 and also have no complications, except for the ones related to low blood. Have only been under the care of a doctor for part of my first year, till I figured out what for the most part their game is. Fortunately I am not completely illiterate and can of coarse read anything a doctor can. Don’t take any prescription medications and never have. Have always lived on sailboats and try not to get involved with the US medical industry.
I do not understand. You are not under a doctors care. Are you on the pump? I take 4 prescribed prescriptions. There are a few that are taken for protection. Please tell me more about yourself if you can.
Anita
Hi Dennis,
We have written to each other before. I was at the conference in Boston for the joslin medalists. I am one who has been to the joslin and have given my blood and anything else they needed for research
Twice. Good hearing from you.
Anita
You can get Novolin R & NPH at Walmart for $24, syringes, and test strips, all of them over the counter. I think a bunch of pharmacys sell the generic insulins OTC.
But of course, they suck. Bolus 1 hour before meal and 4 basal shots a day minimum to do it right. Also, no A1c without doctors, so who really knows where your BG is in between finger pricks. The Walmart Glucometer is pretty legit though, as well as the $10 syringes. Every diabetic should know about the OTC options incase you need a vial in a pinch.
On topic, as someone who has been T1 for 15 years, can I say that we have ALL been T1 for a long time. Even 1 day is a long time to be type 1. Most of us had to get really sick before diagnosis too. The day I got diagnosed was one of the happiest days of my life, I had felt soo terrible for so long, I was just glad that it was something that could be treated and I could feel healthy again…
1 Like
Yes have not been under the care of a Doctor since the early 1960s, except for broken bones and stitches. Have lived all my adult life on sailboats (some with no inboard engines)
and so far am still making it. It is very hard at times for my wife of 35 plus years Linda. Dealing with low blood. Am involved with several onboard projects right now and think I need to check blood. Will give more details this pm.
After my first baby, I developed neuropathy along the nerve tracts in my abdomen and back. Best way to describe, it feels like these areas have a bad sunburn or slapped.
About 10 yrs ago, I developed gasterparisis when the stomach takes longer 2 empty. I’ve been very fortunate w my kidneys, eyes, and feet. After my second baby, my doc started me on an ACE inhibitor used to treat high bld pressure but 4 me 2 preserve kidney function. I’ve been t1 x 47yrs and hope 2 stay fortunate.
Wow(:0 1964 hate 2 say was the yr I was born. I was diagnosed in 72 and developed antibodies 2 beef/pork insulin(ugh remember those?) w/in my first yr. Had 2 take purified pork which was very expensive… typical, until the invention of human, which is still way 2 expensive. Today people make it to difficult w low carb/keto diets… anything w keto makes me nervous, A1c #s and a bunch of other stuff. You’re obviously doing something right 2 still b here. I’m not going 2 say “oh how horrible, u really should see a doc.” I don’t like 2 be lectured at. I really admire your longevity. You sound like, ya I have this, but I’m not letting it get I’m my way. F it.
Twenty years ago I was diagnosed at age 60 with type 1. Total shock since no one in my family (that I know of) had it, and I had no symptoms. Luckily, due to my work as a medical transcriptionist, I was familiar with what happens if diabetes isn’t controlled, and had no interest in losing limbs due to poor control. Since then, I’ve been very careful, testing up to eight times a day, keeping my BGs within mostly normal range. And I walk for an hour every single day. My plan is to reach end of life with all my body parts in good working condition. So far, so good!
Diagnosed in 1963. I have some hypoglycemic unawareness but kidneys, heart and eyes are all good. Wishing you the best!
I hope this question is for information not because you are experiencing complications. I have had type 1 for 24 years now for a long time I tried everything to keep my a1c down. I could never get it below a 8. When I was younger I would be in dka and would still go to work just go to the bathroom then pull myself together and get back to work. I would go into the hospital get fluids and anti vomit pills. Then walk out and go home I wouldn’t stay but a few hours. Once I started having complications and can only eat very little they found out I am a brital diabetic. I can have 3 or 4 good days in a row. Then my bg will do what it wants depending on weather,stress, waking up to many times in the night only or from simply doing to much the day before. Everything can change my body. As of now I have kidney disease, gastroparesis, peripheral neuropathy, polyneuropathy,retinopathy, wolf Pakerson white syndrome. I have had multiple heart attacks and strokes. Thank god no noticable effects from them. All these but the neuropathy came on in the last 7 years. 5 years ago they told me I wouldn’t live another year. My goal is to see my grand kids. This has taking me a while to tell others of my complications but if my story keeps one kid from giving up like I did. It will all be worth it.
Hi @natalie_b_148. If you are asking because you’re new to this, let me just say: I think at diagnosis doctors give their patients a laundry list of complications and things that “could” happen. And yes, some people do develop them after a few years, wrote others go decades with many or none. For the ones that do raise their ugly little heads, though, there are often treatments to manage and maintain them.
I had to stop by my endo’s office this morning and picked up a core of Diabetes Forecast while I was waiting. There was an article by a woman who was told be medical professionals that she might lose her sight in a few years, that she shouldn’t have children, that she should not become a nurse because diabetes made it too dangerous, and a host of other "should not"s. Years later she’s in great health, working as a nurse, had kids, etc because she refused to let others’ limits and presumptions about diabetes, define her.
So enjoy life, manage your diabetes, and if complications do come, desk with them.
Wishing you well!
1 Like
Hi Natalie, I have Diabetes for 66 yrs, as last Feb, no complications. Have a great day and stay safe, Bye Jan