Should Diabetes Affect Your Decision to Have Kids / Adopt?

 A child born to a woman with Type 1 diabetes, who is younger than 25 years old, has a 4% chance of getting diabetes. After that age, the risk drops to 1%. The odds double if the parent was diagnosed prior to the age of 11 years old. Children of non-diabetic parents have less than a 1% chance of getting Type 1 diabetes.

I am going to be in my 30's when i have a child so i fall into the 1% higher chance category. To me 1% is basically nothing. and even 4% certainly would not be a make it or break it factor in me having kids. I am 100% ready to make the commitment for 9 months to be super dedicated and have a healthy baby. In fact Im glad i have to be so dedicated because i really really do not want to gain a lot of weight when im pregnant.

Second the girl in the article used the term "defective genes" I think considering my family is all healthy and even my docter said that after 26 years of having D.. with not one minor complication I actually have good, strong genes, i think im happy to pass my genes on.

I have a question that has been bothering me for a while.  I am type 1 diabetic and so is my husband.  Will the fact that both parents have diabetes increase the chance that the child will?  Everything I read talks about if the woman has diabetes it's this % or if the man has diabetes its this %.  I haven't really read much about both parents having diabetes.

I've thought about this lots of times - I always waiver between adoption and having my own children. I'm not necessarily saying my life sucked as a child (it didn't), but diabetes made it more difficult. I also have several other illnesses that I wouldn't necessarily want to "possibly" subject my future child to.

Of course, then I look at all my friends who are pregnant - how adorable they are with their baby bellies, how precious the little babies are, and the bond you have when it's something you've watched grow and develop inside you... and I want that. I want it all (even the horrendously painful childbirth).

Percentages don't mean much to me... I know and understand the risk factors. Because I also have kidney disease, I would be a very high risk pregnancy, but this doesn't mean I couldn't have children, just that there's a higher risk to both me and the baby. I am also on a kidney medicine that I can't take while pregnant and the kidney doctor questions how well I would do without it. These are all things I know, things I think about. I've considered getting my a1c into "baby range" now, so that if the day ever comes I decide to have children, I would be prepared diabetes-wise. But, with no current boyfriend, steady income, or any prospects of either on the horizon, I find motivation very difficult for that :o)

In the end, who knows what I'll decide. I know I'll have guilt should my child be diabetic, but I also know I will love him or her fiercely and their health status won't really make much difference in the scope of things. I also realize there are so many children out there already who need good homes - especially those with special needs. Everyone wants, desires a healthy baby, so there are millions of special needs children out there who may never find a place to live simply because they're "different" and aren't up to the "normal, healthy" standard. What's normal and healthy? I consider myself both :o)

Come see me in 10 years and we'll see what I've decided :o)

I would really like to have my own biological children, but the diabetes does make me hestitate, and I think adoption is seriously on the table.  I am not as concerned about passing D onto my kids (the inheritance is not as common as it was once thought to be).  My concern is the sugar control during the 9 months and the damage that high sugars can cause to the baby.

Can anyone talk about the extra steps that they took before/during their pregnancies to make sure these problems didn't occur?  Another personal question: did you all have c-sections because we are "high risk" pregnancies? 

I would appreciate any feedback.

DiabetesNewsHound - Just like Kelsey probably didn't mean to imply that having her own biological children would be irresponsible, I didn't mean to come across like I was attacking her decision.  Sometimes tone is really hard to convey in writing.  I'm sorry that I sounded like I was judging her so harshly. I think it's great that she has given a great home and family to a child who needed them and that in fit in with her own needs as well.  I guess it just set me off a little because I remember my own feelings about having children when I was first diagnosed - I was terrified.    

I incorrectly believed that I would not be able to have kids or that it would be a near impossible task that would jeopardize my health.  I'd been led to believe this by people who didn't know 100% what they were talking about...and yes, by the movie Steel Magnolias.  Reading Kelsey's post, I was truly afraid that another young woman with T1 would read it and think the same things.  And those things ARE myths.  Those kinds of outcomes result when you are not properly taking care of yourself. 

In researching my decision to have a child, I found many women who'd carefully and succesfully controlled their BGs for 9months or more and had healthy, happy babies.  It was liberating and relieving to learn that this WAS an option for me.  Of course, every woman is different and everyone's diabetes is different - some have a harder time with the control than others.  But to know that I COULD do it if I chose to, and to realize that the scenarios portrayed in the movies only happen when you really don't take care of yourself...that was knowledge that gave me confidence.

A few on this thread have asked for info about controlling BGs for pregnancy and have wondered about personal experiences.  Check out the Diabetes and Pregnancy group here on Juvenation.  There are lots of inspiring stories with healthy and happy outcomes. http://juvenation.org/groups/diabetes_and_pregancy/default.aspx 

Also, a good endocrinologist or CDE can also give you realistic expectations for a diabetic pregnancy and can help you get in tight control - so be sure to ask yours if this is an issue that you are seriously thinking about.

DNewsHound,

Myself, I don't think people on here are taking things too personally, like you were worried about. I think advocacy can be very empowering. When women have depression, ADHD, migraines, etc, you don't hear people advocating not having have kids so they won't pass it own. Again, I'm not in any way against adoption and my husband and I have talked about doing it many times. But, I worry when someone quotes their endocrinologist about being so thrilled about avoiding a T1 pregnancy, that this could imply this is the medical recommendation. I also think any serious person would want to provide both sides of an issue.

Anyways, it seems like you posted the link b/c you knew it would get a big reaction that you'd disagree with ... lol (; So, here we are!

Sheesh, when did we all get so upset about hearing a point of view that may differ from our own? I didn't post the article to "get a reaction", I posted it to spark a discussion on a topic that I'm sure many people with diabetes have thought about in the interest of sharing information and helping each other. When you don't like what someone is saying, it doesn't mean you should personally criticize the person saying it.

I did know it had the potential to be a topic that could stir people's emotions a bit, because when dealing with kids and family planning, people always have strong opinions. However, that surely wasn't the purpose -- just a concern I had when posting it. Many people do worry about having diabetic children, because we all understand how tough it can be at times and we all want the best possible life four our kids. I have heard from several people that enjoyed the article and share Kelsey's point of view and experience. 

The reality is that people with diabetes have a statistically higher chance of having children than non-diabetics. In fact, if both parents are T1 diabetic, the chances could be as high as 25%. These are not opinions, they are facts. Each person needs to weight what, if anything, those stats mean to them. This article is also about adoption, which can be a great thing, as you noted.

I agree, I would be offended if anyone other than my doctor told me what I should do medically regarding my diabetes and my family.  But nowhere in the article does it give medical advice or tell anyone what they should do. It provides one person's point of view -- food for thought. As a diabetic, I can tell you this was a topic I had thought about appreciated Kelsey's point of view. The COLUMN was a first-person account -- it was not an in-depth expose researching the risks versus benefits of the history of childbirth for people with diabetes. I assume anyone that has medical concerns will speak to their own doctor and not base their decision off of one or two lines in a column. As for other genetic-related illnesses, I can't comment on what specific challenges or concerns they face because I do not know.

That said, I would like to have children someday. I don't know if the risks would be enough of a deterrent for me to have my own biological children. I suspect they wouldn't, but I am still unsure. This can be an incredibly complex issue for some. I think weighing the risks versus rewards and hearing different points of view is never a bad thing -- even if you don't agree with them.

Michelle:

I tried to fit in some walking when I could, and tried to eat good.  I didn't always do perfect, but i saw the doc often, at the end it was like weekly,  I had c'sections, but I don't think I had to.  I think it was a overly cautious move from my doc that I didn't agree with for my first child,which led to another c/s for my second. i have to say I personally enjoyed being pregnant!  My children are 8 and 5 and are healthy active kids!! Check b/s often, eat reasonable, and drink water. 

Hi All, 

First of all, I am Kelsey of the A. Kelsey Metcalf who wrote the article about adoption.  I wanted to thank each and every one of you who responded to Chris's post.  Thank you for the supportive and kind remarks and thank you also for the criticism - I recognize that you kept your comments focused more on your passion for this topic and stayed away from remarks that could have been very damaging as I know it would have been easy to "go there" with a topic this potentially....tempestuous...
I thought I'd address a couple points that were made:
1)  My decision to adopt was mine.  While I did make the decision with my diabetes in mind, I in no way intended to say that this is what all diabetics, or people with chronic illnesses should do.  I don't believe that.  I have many friends with type 1 diabetes who have successfully given birth to beautiful healthy babies and each and every one of them amaze me.  I just didn't want to.  My desire to adopt was much more about adoption itself.  If you want a glimpse into what prompted that desire, please read "A Child Called 'It'" by Dave Pelzer.  His story will change your life.  My choice also led to the type of adoption we chose - a public adoption where you adopt a child in the "system" rather than a private adoption where you're matched with a woman already pregnant and looking for an adoptive family.  We actually did begin a private adoption for a second child to expand our family, but then eventually realized that we liked our family of three and wanted to stick with a good thing.  Having experienced (most of) both types of adoptions - If any of you looking to adopt wish to contact me, I'm happy to field your questions.
2) My 29 years with diabetes have been relatively good and I'm very lucky to not have any complications from the disease (yes, I just knocked wood).  I might have been able to successfully carry a pregnancy to term, I don't know.  I never even bothered to explore that route.
3)  My reference to the movie Steel Magnolias  was more for a moment of (apparently unsuccessful) levity during a difficult topic than about it influencing my decision to adopt.  The movie that more influenced my decision was the one I watched in health class when I was 12 showing a baby being born.  Women who have seen this and still choose to give birth should receive an award.  I applaud them. And speaking of applauding...
4) My endocrinologist at the time did actually applaud when I told him.  I understood where he was coming from - concern about my health and this decision alleviating any need for concern.  The same goes for my mother's reaction - now that I am a mother, I understand it so much better.
5) It actually WAS hard to accept the fact that children, no matter how they come into your life, do not come with guarantees.  Adopting a child through the public route meant that we met her medical history before we even met her.  Her file was several inches thick and I read through every word three times.  It scared the heck out of me.  Worse though, was the dawning understanding that the child didn't come with an instruction manual.  They don't tell you this when you decide to have children.  Why don't they tell you this?!?!?!
6) My defective genes....  Well, I know that sounds harsh, but it is how I think of it.  In my family alone, we also have depression, cancer, and a slew of other issues.  My husband's family is not known for its longevity so it's hard to say what lies within.  Additionally, seven weeks ago I was diagnosed with Rheumatoid Arthritis.  It is yet another betrayal of my immune system but again, I'm just glad I know I'm not passing that fun little issue onto any unsuspecting little people.  And yes, my child could still develop any number of medical concerns - like any parent we'll deal with them with aplomb and fight for her with every ounce of our beings.
I hope that helps explain what my 500+ word allotted space couldn't and I thank you all again for your comments and even what I suspect was restraint.  I mean that very sincerely.
Kelsey

hello Kelsey :) Nice to hear from you ,thanks for posting :)

Thanks for your post, Kelsey.  It was nice to read more about you and get a fuller picture than the small column allowed for.  Thanks for explaining things the way you did and not taking the critiques the wrong way. And I totally know what you mean about that crazy health class video...that gave me nightmares for years and I had some serious work getting over it before I had a baby!

[quote user="Kelsey"]

 

I might have been able to successfully carry a pregnancy to term, I don't know.  I never even bothered to explore that route.
6) My defective genes....  Well, I know that sounds harsh, but it is how I think of it.  In my family alone, we also have depression, cancer, and a slew of other issues.  My husband's family is not known for its longevity so it's hard to say what lies within.  Additionally, seven weeks ago I was diagnosed with Rheumatoid Arthritis.  It is yet another betrayal of my immune system but again, I'm just glad I know I'm not passing that fun little issue onto any unsuspecting little people.   

[/quote]

Thank you Kelsey for sharing your story. I think many people including me got a little passionate about this because of the tone the article was written in. After reading it , itgives you the impression that you adopted because of Diabetes and for reasons such as "not wanting to pass on defective genes" but after reading your response I see that it was actually a personal decision which having D did influence and you never actually even explored being pregnant with D.. And also as you said there is a slew of medical issues you do not want to pass on not just D. Thank you for clarifying this.

 

Hello to all,

Well I've been reading everyone's posts & this subject for me is a touchy one but let me explain why and you can come to your own conslusions. I was 19 yrs old when I was diagonsed with T1. The family Dr that I had durning this time really wasn't great but after the diagonsed, I was admitted to the hospital(as many of were/are) the dr that admitted me asked if I'd ever thought of having a tubal, at that time I wasn't even thinking of having childern(because I wasn't ready & the bf I had at the time didn't want childern) so this dr that admitted me told me to speak with my family dr about this. So when I was released from the hospital I had an appoitment with this family dr. Now during this time I didn't have any type of support system & I didn't know any women that had T1 let alone childern. So this family dr had told me that if I decided to have childern I would pass my "diesase" onto my childern, then he asked me if I could give my newborn insulin shots?? At that time it made me feel that I wouldn't be able to handle giving a child that young insulin shots(if needed) but what else he told me was that during the whole time the chances of me losing the baby or losing my life or losing both lives were extremely high. And he really pushed for me to have the surgery. So after being told all of this & being so scared of having childern I thought it would be the best thing. The family dr got me in for this surgery within 6 weeks of this appt with him. What I realized afterward was that this family dr was the type of man that wouldn't even give women birth control & he put his religion(Christianity) above his Hippocratic Oath to care for me with prejduce. I had the surgery done 3 mo's after I was told that I was T1.

Something that I want you to know is that ever since I was 16 yrs old I wanted my own childern with all my heart. After the surgery was done I cried myself to sleep for at least the 1st 2 yrs or so, then I moved & got my 1st endo. he was appuled by this decision & the way my previous dr has swayed me(by only telling me the bad about being T1 & having my own childern) so my endo had asked the governing medical body to review my case & found that the family dr was in the wrong & he had his medical license taken away for 6 mo's. And I had written to the same medical body to see if I could have a reversal done(at no cost due to the situation) but they told me no & that they were sorry that this happened to me.

Two yrs later I still wanted childern so I went to an OBGYN to see if the reversal done so that I could still have my own childern & the OBGYN told me that he would do the surgery for me but couldn't gartnee what my chances of getting pregnate on my own were. But it didn't matter to me at long as I had the choice again. Then the OB told me that he could do the surgery for $3000 paid up front to the hosiptal 1 mo before surgery. And there was no way I could come up with that kind of money so my dream disappeared again!!!!!!!!l

Then 4 yrs later my brother died from T1 & I found my self the last of my family & bloodlines now, and it became very hard for me. I cried myself to sleep every night for 11 yrs from the time I had surgery. And now I think that pregnate women are so cute & I love the wiggle!!!! But if I'm around them to long I will break down crying(because I remember that I will never experience that) and I do the same thing around ppl that have newborns, as soon as I see someone come near me with a baby I go the other way as fast as I can(it just hurts to be around them & it's not their fault)

But since I've had the surgery I have had 2 miscarriages & it broke my heart. I have considered adopting kids but here in canada it takes yrs & they go through every aspect of your life with a fine tooth comb & when I consulted many adoption agencies to ask questions they said that chances of me getting a child wouldn't be very good because of the T1 when the child could go to "health parents".

So this is my story, think & comment as you feel about this but remember that if I could still have my own kid(s) I am very sure I would do it in a heartbeat!! Thanks for letting me voice my situation about this.

CJ 

Thanks so much for the feedback guys and thanks for sharing your personal experience cyn. :)

[quote user="Kara Schluender"]

I do not plan to have children, but that is completely unrelated to being a diabetic.  I get angry when people assume that my choice is because of diabetes.  If anything, my choice is based more on my anxiety disorder than diabetes.  I don't want to have children because I do not want that responsibility.  At this point, I do not feel called to that life.

I know parents who only had children because "isn't that what married couples are supposed to do?" and they do a bad job of raising their kids.  Even as a little girl, I wanted to be an artist or a scientist, not a mommy.  Legos and Playmobile were higher on my list of favorite toys than dolls.

[/quote]

I'm on the same page!  I liked dolls, but not to pretend they were children.... I liked designing fashion for them.  I am lucky, my husband also isn't really into kids either.   If we decide later that we want one, we will adopt from the foster care system.  We would want a 7 or 8 year old instead of a baby.

Like everyone here I have run myself in circles trying to conclude the "right" answer to this subject.

I was diagnosed in '93, the day before my 18th birthday.  I was blown away.  I got used to the injections, but still never fully accepted my diagnosis.  I have troubles with it even to this day...  2 years went by and my new family Dr. wanted me re-admitted to hospital for more education, and to regulate the BG readings I'd basically been ignoring.  While in the hospital this time, my new Endocrinologist warned me of two things... "Quit smoking, and do NOT get pregnant."  She told me that I needed to have my blood sugars regulated well BEFORE deciding to become pregnant, and that I should come to her first with my decision, rather than show up at her office saying "Ooops! I'm pregnant!"  She told me that unplanned, there were to many risks for my own health, and of course the health of the baby.  The thing that stood out the most from that conversation was that my child could be born with a hole in it's heart!!!  This horrified me, but being young, in denial (I knew I was diabetic etc etc, but still wasn't fully coming to terms with everything it meant, afterall, I had been a regular, healthy human being until 18) AND in love, I showed up at her office 6 or so months later saying "Ooops, I'm pregnant!"  I remember actually being afraid to go see her, to tell her that not only had I crossed one of her warnings, but I also hadn't quit smoking!  Her response shocked me, she wasn't mad, but she helped me understand everything I needed to be aware of and helped me to create my BG goals.  The two of us worked very hard as a team for 9 LONG, but in hindsight SHORT months.  My biggest relief was when she told me my baby's heart was pumping healthy, no holes!

It helped tremendously that my spouse was ok with me quitting my job at 3 months of pregnancy.  I had 6 months of home time that I was able to strictly monitor my BG's around the clock.  It wasn't until well into my pregnancy that I even conceived of the higher possibility of my child becoming insulin dependent one day (KNOCK ON WOOD, at 13, he still has NO blood glucose problems!).  February 20th, 1997, after 17 hours of labor, we welcomed all 10lbs 15 oz of Trenton to the world.  He was born with a BG reading of 1.7 (<---I'm canadian lol) as the nurses forgot to give me glucose gel when I went into delivery.  It was 3 minutes before we heard his voice cry for the first time after he'd been born, and he wasn't oxygenating properly.  They described him to have an extreme headache due to the forceps used (yes, I delivered vaginally!) and he was in a lot of pain due to the Dr. needing to break his collarbone to get him out.  I'll still never understand why they didn't do a C-section.  I could have cared less about delivering vaginally, I just wanted a healthy baby.  I was kept in hospital for 5 days after I delivered, and fell so incredibly in love with this beautiful gift.  I was released, but Trent had to stay in NICCU for several more days, as it took him this long to be oxygenating properly,  The happiest day of our lives was the day we went to the hospital with his carrier in hands.  We knew we were finally going to bring our baby home.

What concerns me more is that since at age 8 our son was diagnosed ADHD, if he ever were to become diabetic, it would be super hard for him to manage his disease.  What also concerns me is the fact that he's been exposed to so many of my low blood sugars, and the emotional impact that must have on a child, especiallly one who's struggled so much.  This past weekend, his father was at work, and I had a sleeping low at about 7am.  I  was sort of concious of myself crawling across the dining room floor, unable to express anything, and Trent awoke to the god awful moans that I could get out.  When I saw him I did manage to say "JUICE!" which he gratefully ran to the kitchen to get.  Of course the vomit followed shortly after.  He helped me onto my bed and brought me another drinking box.  I told him as best I could that I wanted to stay there until I felt able to walk.  Later that day, I told him if anyone, teachers included, gave him a hard time at school on Monday, simply ask them if they saved their mother's life this weekend.  He shrugged it off, with that "whatever" look that teens sometimes have.  I told him that I needed him to understand just how much I appreciated his help, and that it truly was life saving.  I told him he is my hero.  However, I never in a million years would have wanted to have a child who felt like his mom could slip away from him at any given time.  He's no newbie to death, lost his 39 year old uncle to esophageal cancer in November 2004.  His live in grandfather to a massive heart attack in Jan. 2005.  His grandmother to alcohol abuse in Feb. 2005.  And then his 34 year old uncle to suicide in 2006.  This was my parents, and both my brothers.  So I know this certainly has to be a scary existence in many ways for him.  I can only hope  he's learned about our strengths as a family, and can see that as an individual, he has those strengths too.

All in all, life with diabetes sucks.  But I wouldn't trade my decision to follow through on my pregnancy for the world!  If he had have been or becomes insulin dependent, then it's just another bit of life we deal with when it comes.  A lot of kids are much better handling their diabetes than I am.  Kids are resilient.  I'd say instead of fearing it, use that energy to become the best role model/teacher, should the time come. I'm a big believer that God gives us no more than we're equipped to handle, and the same goes for our kids.  Best wishes to all.

Hello All!

Yes, I think diabetes does affect your decision to have children... but only in that diabetes affects almost all our decisions, doesn't it? It's *so* personal and *so* individual that I think all we can say is that the decision on how, when, and if a person with diabetes should start a family should be a thoughtful one, and diabetes definitely plays into it.  In an ideal world, everyone would think and plan before starting a family - we just get the added "bonus" of thinking and planning around the D.

A few random thoughts after scanning the 3 pages of responses:

"Steel Magnolias" is based on the true story of a woman with diabetes, who died much too young from diabetes complications, in the early 80's (before home blood glucose monitoring).  The movie is fictionalized, but is based on a play written by the woman's brother.  It's an extreme situation - even for 30 years ago - but basically true.  I tried to put a reference to Steel Magnolias into my book several years ago, and the editor nixed it, saying it was too old of a reference.  The editor didn't get that we'll all ALWAYS know about Steel Magnolias ;)

My husband and I both have T1.  Our oldest was dxd last year.  It sucks.  But - like another commenter's husband said - we know a lot about how to manage it and deal with it.  And his diabetes is certainly a whole different situation, compared to my husbands (he was dxd in 1967). His diabetes doesn't make me doubt my decision to have kids any more than other parenting challenges do.

A good friend of mine decided to adopt because she came to the realization that she wanted to be a mom more than she wanted to have a pregnancy, and she knew that - for HER - pregnancy would be a physical challenge that might affect her down the road.

-Kassie Palmer

 

 

very well said, kassie. thanks for sharing with us.

CJ, I'm so sorry to hear your story. Obviously, nothing can go back and fix it. But, I hope you find peace in your life.

Re: Steel Magnolias, I wanted to throw out there that while I was pregnant, I was in touch (in person and online) with a variety of T1 mommies as an inspiration to me during that stressful time. The biggest inspiration was my monthly phone calls with my husband's boss's childhood friend. She has had T1 since childhood and is in her late 50's now. In the 1970's, before home glucose monitoring, she had 2 successful pregnancies w/o any complications. She is now a proud Grandma. She was also the first T1 Mom known to nurse her baby in the state of NC, and other doctors from around the country studied her b/c they were so surprised and impressed she was able to breastfeed. Her drs had advised against it, but she insisted on trying! I think we all know that we can do the things we want to in life despite T1 (including pregnancy OR adoption) but it takes more work for us. But, stories like hers inspire me to take advantage of our current medical technology and to try to live my life as "normally" as you can with T1! I'm usually more on the cynical side, lol, but I wanted to throw this message of hope out there b/c it seems like this is a difficult issue for a lot of young people on here.