Newly diganosed and mystified

Becky
As I understand it, these foods are so good at converting to glucose that it can’t all be used at once. So it is stored. Some is stored in the liver. Some is delivered now, some later.
This is a good article on the topic:

Cheers

Hi! I didn’t read through all of the comments, so this may be a repeat, yet a few things…
If others input about your liver is correct, could you ask to off-label the T2 medication metformin? It sounded crazy to me when a T1 lady mentioned it at a support group meeting, yet it significantly helped her dawn phenomenon as metformin isn’t insulin-dependent, it acts on the liver. Also, have you tried fasting and not having dinner? Does the same glucose trend hold? If not, maybe you also have bizarre food sensitivities, even more so than some of the more commonly known ones for autoimmune conditions. Fat free, carb free cauliflower is now being a disaster for me, and was spiking me to over 200 while I slept after trying riced cauliflower for dinners. The same thing occurred more dramatically for me with Rice which required about 5x’s my I:C dose and set as a four hour delay. Low carb greek yogurts would do the same thing. You likely already have looked for trends, yet if you haven’t already, maybe try a food journal to see what seems to trigger your hyperglycemia, even unlikely things like cauliflower. And, it might not be possible as a vegan, yet the Autoimmune Protocol (AIP) diet addressed some of this for me. My stomach acid was too weak as a vegetarian to try it the first time, but other severe pain had me attempt it again. The pain is less, the trigger foods and their hyperglycemia did not resolve. I know just avoid a heck of a lot of foods. Now to conquer newly failing infusion sets by the dozens. Good luck!

Thanks again for the comment and suggestions. Fortunately I don’t have a strong dawn phenomenon - although when I do go highest in the morning it’s always and only the morning after eating a meal with bread. I am keeping the food sensitivity issue in mind. Yes I have looked for trends and kept records of what I eat. It only happens with wheat flour. If I do a dual bolus for things like chips and potatoes, I don’t usually have a high spike issue. But even if I do a triple bolus for bread, it goes high. I had a miserable night just the other night where I went to 330, the first time I’ve ever been in the 300s. I am now scared of bread, which I otherwise love and love making, and feel pretty dejected at this point. If it is a food sensitivity, it’s an intolerance to wheat, NOT to gluten - I eat tons of gluten via seitan and have no issues (fortunately). I’m so scared of my body at this point that I’m going to avoid bread altogether for a while. Maybe I’ll find a solution. I’ve thought about setting up an appointment w/ Integrated Diabetes… anyway thanks again. Having to cater one’s diet to a stupid disease is so crappy, so sympathy there.

Ya, the fear of my body thing is new for me, and already super old. It sounds like you have your culprit figured out. Wheat. With being vegan, I am sure you are already very savvy on food substitutions, and more. If you haven’t already, though, you might try almond flour if you can spare the calories. Even with the guidance of a dietician and gastroenterologist, I wasn’t able to reintroduce many foods, like the cauliflower I spoke of. Sadly, the solution is still to just avoid it, like it sounds like you’ll be trying with wheat. There is the theory of healing the gut lining to improve autoimmune conditions, yet I believe many foods still remained restricted, like most grains and nightshades, etc. Best of luck to you, and your new mission of a wheatless bread.

Thanks for that tip as well. We’re kind of a prisoner of what our bodies want to do to us. It does get old. It could be worse, too. A key aspect for diabetes, since it requires so much daily management, is feeling empowered, but that’s difficult to come by. It feels like willfully brainwashing yourself: “No, I don’t want that food, or that much of it, it’s MY choice, not my body making me!” I wish you the best as well… Thanks again for your suggestions.

1 Like