My 9yr old just got diagnosed 6/8/20

Make sure she has a 504 plan (or what ever it is called where you live) up to date spelling out her complete EMERGENCY ACTION PLAN. Make sure it contains what she may do and what she will need assistance with performing, when a parent should be notified, and when EMS should be called.

Additionally, the plan should specify what accommodation she will need like, snacks in class, specific lunch time, specific lunch calories, carbs, & protein, etc.

1 Like

@987jaj she will not be going to public school this year. I’m homeschooling all my children this year but if it ever changes I will be sure to do this. Thanks for the information.

1 Like

May I suggest you put together an EMERGENCY ACTION PLAN with all of your family. Put it in a notebook so all family members know what to do in a situation.

1 Like

@987jaj I did that already cause I read in one of the books we got that it was good to have.

1 Like

J, first of all, you are amazing and knowledgable and you have described diabetes to the T! You really do understand and the fact that you have taken the time to answer these questions and to go onto this forum on a regular basis is just really cool, don’t go anywhere! I have had diabetes for 38 years and I have friends who have had young kids diagnosed over the past few years and my response to them with my own experience has been very similar to yours here. You will benefit many many people. Nice work :wink:

1 Like

Hi Natasha. My daughter, 10, was diagnosed on April 18,2020. I can completely relate to your fears and anxieties. Both my husband and I are nurses and we still had those feelings. Fortunately, there are so many advancements with this disease and resources out there to help all of you. We started our daughter on the G6 Dexcom glucose monitor right away. It is great! She will start the tslim insulin pump at the end of the month. Hang in there. This is a great forum with a lot of information. :blush: Megan D

Hi! Well…it looks like you have found a great resource already. As a 35 year vet, and a 9 yo son recently diagnosed, I can tell you that the above advice is really good. One thing I wanted to add…there may be assistance programs available for your daughter’s medical needs. In Ohio, we have a Medicaid program for chronic illness…and T1D qualifies. If you haven’t gotten any info…ask the hospital for their social worker. Thats who explained it all to us, and helped get the paperwork sent in. Also…i whole heartedly agree, the Dexcom 6 is an invaluable tool. It allows you to sleep without worry…the alarms will wake you if there is a problem.
One last thought…this is a marathon. There is not perfection. Work on learning her body, keeping her safe and know…things will always change. It’s extremely frustrating…but the reality. It’s more about keeping in the bumpers, than holding a straight line. It will get easier.

The 9th in a family of 13 I was diagnosed at age 9, in 1969. My mother quickly helped me understand that I would live with (formerly juvenile, now type one) diabetes (T1D) ALL of my life. She agreed to help for a brief period as I got used to frequent doctor visits, thankfully we did have insurance.

Then it was all on me. Mom would buy groceries for the family and a few low sugar items were specifically for me.
I learned how various foods caused my blood sugar level to go real high; making me sluggish, tired and irritable. And extra exercise cause me to crash, as in fall into the ground semi conscious on school baseball diamonds. In the late 1990s, the inability to do basic math was tied to blood sugar levels around 55 mg/dL. A childish focus on single things came around 35 to 40, and sleepy unconsciousness generally appeared a bit below 20 mg/dL.
My late husband used to be able to hear a difference in my voice when my sugar was falling.

Balancing my insulin injections with eating the same food items over and over helped. Then the desire to eat something different interrupted the calm that had been created. As time passed my T1D education was based on experience and “trial and error.”
Carbohydrate counting was not learned until 1995. This talent has made a huge difference in my life. Yes, carbohydrates from vegetables metabolize slower than those from plain toast, but 12 grams of carbohydrates needs about the same amount of insulin to digest. The source just helps indicate the proper time to take each food bolus. If fatty butter is put on the toast, its movement into my blood stream would be drastically slowed. My understanding is that plain carbs move into the system in 2 to 4 hours, proteins 5-7 and fats take around 9-13 hours to break down. Decades ago I studied to become a Dietitian from the state college here. This broadened my diabetes education, but never became a career. Knowledge is power.

A kid also has growth hormone activity affect food utilization, mine peaked around 14 to 18 years of age. Growth hormone makes childhood food errors “forgivable.” It has the ability to turn excess food into a larger body. Working on the family farm this allowed me to throw watermelon and bales of hay or straw just as my brothers did. Once into my 20s it became far more important for me to control my food intake to not need extra insulin, and get especially fat. Today about 20 total units of daily insulin keep me going. I am far from an ideal diabetic. Still alive, I believe I am winning.

Trust your daughter will learn. It is her body, she will find out more than her siblings, yet each will also learn a bit, about diabetes management. Recognizing when she is acting differently to indicate a hypo- or hyper- glycemic episode is at hand is primary knowledge. Also knowing how to tend to each situation as it arises is very important. And never assisting her in cheating on her diabetic diet may become new chapters in the siblings lives.

●An earlier suggestion

“…yes, she can eat things simply because she enjoys then (them) as long as she covers then (them) with insulin…”

goes against all I know about living with diabetes. Yes, insulin can permit occasional overly sweet foods into a Diabetics diet. I understand that EVERY time such a goodie is consumed EVERY organ has to deal with it. I.e. More saliva production. The circulation system gets an influx of overly sweet blood, the blood vessel walls need to move all that sugar into fat & muscle cells. The vitreous humor in the eyes has an increase in their pressure with the higher glucose level, even if it is “temporary.” The lymph drainage has more waste products to carry away from your muscles as it gets metabolized there. The kidneys get to push through more high sugar urine, jamming up it filtration system, with ever high sugar episode that makes one thirsty so water can dilute it down…
I had a heart attack at 33. To me it was caused by poor food choices in my teenage years. Far better choices through my 20s did not erase the side effects of junk eaten in high school.

I suggest a goal of getting FOND OF PLAIN VEGETABLES. No salt, no sauces or gravies, no cheese, no nuts or seeds… Just eat crunchy fresh vegetables. The diet changes with the season. A root cellar helps provide good eats during the cold months.

●Rotate the sites of fingertip tests. Test on the SIDES of fingers. The fingertips have LOTS more nerve endings.
My index and little finger were avoided for a couple reasons. The middle & ring finger sides were used for tests. I made a grid and marked it each time a test was done to easily see where, in my totation, the next test should go with the least pain and most healing time between stabs.
My rotation, up until a Continuous Glucose Monitor (CGM) came into my life was this…

Left hand:
Thumb side middle finger under tip area
Thumbside ring finger under tip area
Right hand:
Thumb side middle finger under tip area
Thumb side ring finger under tip area

Left side:
Little finger side middle finger under tip area
Little finger area ring finger under tip area
Right hand:
Little finger side middle finger under tip area
Little finger side ring finger under tip area

Then I moved down the sides of my central fingers. Halfway to the first knuckle region and then just above that knuckle area… always on the thumb or little finger sides of my central digits. Always don’t the thumb side before the little finger side.
My grid, kept in my blood test kit container along with a short pencil, was 4 columns. This slash \ meant thumbside, / one indicated little finger side. The first two slashes were for my left hands 2 digits, leaving the right two slashes to represent my right hand fingers used in testing. There were 3 rows between darker bars. The top of my fingers were the topmost row…the bottom of my fingers were represented by the lowest of the three rows. Truly you can just devise a scheme that works for you.
Yes, it seems a bother, but my fingers never hurt from 7-8 daily tests. Rotation is a key to insulin injections too.

Too much rambling, I will leave you be now.

My 12 year old son was diagnosed in early June and this forum has been a source of great information and comfort so ask anything that comes to mind. Your concerns will be addressed quickly here!

My son is a very picky eater who basically eats the same things, which helps with keeping his glucose level stable, which was discussed a bit in the previous post(s). I too have to be more educated on quick digesting/slow digesting foods, the effects of fat/protein from a meal on level, etc.

It’s a continual, learning process, but it is starting to get easier. We’re even starting to notice some mood changes when things fall to the lower side of his range.

Overall he’s been great, which lifts more of the worry than he could imagine. We’ve had our moments, but I just try to stress day by day and take things as they come. It does get easier and we’re approaching the 2 month mark.

A Dexcom G6 is in the works and I hope it clears insurance and is delivered in time to get used to it before a return to school.

He’s also starting with a NovoPen Echo tomorrow.

1 Like