I’m the mom of a 9 year old, diagnosed December 27, 2014. Up to this point, we have needed so little insulin to keep his numbers in the recommended range - in fact, we’ve backed off Lantus two times! All of a sudden, his numbers are starting to rise. And by rise, I mean they are now pretty consistently 100-140, where they had been no higher than 90. Today at lunch, his BG was 151 … I know it is just probably the end of his honeymoon, “normal” for diabetes. But I want to save his beta cells. I want him to be 12 and able to participate in the clinical trial posted on this page. Today I want him to be able to fight this condition and win. Grief isn’t a linear process - that’s for sure - just feeling such a loss right now. I’m posting it here simply because I feel like those reading can understand … Thank you
It has been a long time since I was diagnosed and since I was at the honeymoon stage but i truly get the feeling of being at a loss. My honeymoon stage ended when I got sick. I keep hoping I can get back to a honeymoon stage and I hope that it all pans out for your son.
I feel your pain… my son is 17 just diagnosed in January. He’s in big time honeymoon. … we have lowered his Lantus from 24 units right out of the hospital 2 Mos ago down to 9 units right now . His carb ratio was at 1:10 and is now 1:24 … Im still not sure we are done lowering his dose yet… sometimes we do every thing right and his sugar will jump or fall for no apparent reason… it’s hard . You feel like “I’ve got this!” Then you find out you don’t … we can only try to do the best we can to be a human pancreas . stay strong … take care of yourself too because I’ve had to go to the dr myself due to stress and now a pinched nerve in my neck … it’s overwhelming but my sons great attitude is what keeps me going … thank god he is so resilient! Take care … talking on here to others who really understand helps
Thank you. It did help to post on here, where people understand! You stay strong, too - I hope the pinched nerve resolves itself soon, that pain is so bad!
HabitChic - I hope that everything pans out for you, too. Scientists are making progress - I keep reminding myself to hold on to hope … it is just hard (sometimes) when the day to day is so confusing and unpredictable!