Try Integrated Diabetes Services (the founder is the guy who wrote Think like a pancreas). They helped our son a lot with his basal and insulin in general where his hospital didn’t help much. Also listen to the podcast “Juice Box” The guy talks about it a lot and he helped a lot.
Hi Amy,
Please know you are not failing your child. The fact that you have learned as much as you have about your daughter’s condition is evidence that you are trying hard and doing your best.
I became T1 diabetic when I was 6 years old and I am now 53, have had 2 healthy children, no cardiovascular issues, no diabetic eye complications, no kidney damage and no nerve damage in any of my extremities. I say this because when I was diagnosed in 1974 there were no blood glucose machines, no insulin pumps and the only “testing” that I could do was to test for sugar in my urine which is an inexact science at best. As I reached the hormonal roller coaster of adolescence there were times when I became DKA for no known reason and ended up in hospital. By my mid teens the first blood glucose monitors were being invented but it really wasn’t until my 20’s that they were in common use. I have had periods of good control and periods of disastrous control but overall the lessons my mom taught me about healthy well balanced eating, staying active and most of all not letting my diabetes control me or hold me back have given me the tools to stay healthy. In my experience, stress has the most difficult impact on blood glucose as it is not tangible nor measurable like carbs or exercise, and neither is it as recognizable as some flus/colds which affect blood sugars. The best help you can give your daughter is to calmly approach the fluctuations in her blood sugar levels, and not let on to her that you are freaking out inside. Highs and lows happen, I’ve had more than my share, but I am still healthy 46 years later and I am also sometimes still confused by unexplained high readings (it’s usually stress). Your daughter should grow up knowing that diabetes does not restrict her life but makes her stronger, tougher and more resilient because of the delicate balancing act that you and her will learn to master over the years.
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