Hi Everyone,
I just joined this website this week and it is pretty cool! I'm 20 yrs old and from Toronto,ON.I was diagnosed with Type 1 at the age of 11 and then diagnosed with Addison's in 2006.
I was wondering if anyone else has Type 1 and Addison's disease? I know Addison's only affects like 1 in 100,000 or something like that, but it would be nice to talk to someone else dealing with the same things i'm dealing with.
Hi Leanne.
My son was diagnosed in 2007 with diabetes. His cortisol levels have been borderline a couple of times. His endo called it "adrenal insufficiency" but he hasn't been diagnosed with it. I learned that it is actually called Addison's Disease when I learned that my cousin has 2 daughters with it. It makes me very nervous that my son may end up with yet ANOTHER autoimmune disease. (This would be three.) :(
Hi trish,
It seems like not many people know what Addison's is so I usually just say "adrenal insufficiency", thats what is on my medic alert as well. I'm sorry to hear about your son. I take hydrocortisone and fluronef for my addison's and since I have to take hydrocortisone (a steroid) it makes me a little insulin resistant so my insulin rates are higher than they would be without addison's.
It bothered me a little when I cried and the doc said, "He would just have to start taking a pill everyday." JUST.
Anyway Leeann, I hope you do well with all that has been handed to you. Thanks for the extra info. My son is pretty sensitive to insulin (he's only 4) and so a little resistance probably wouldn't be so bad, but I don't wish it on him.
JUST take a pill everyday? ha! It's not as easy that sometimes. I have to take a couple pills a day, and depending on my physical activity, and how stressed I am I have to up my dosage. Also just like with diabetes, sick days with addison's requires adjusted doses.
Thanks for sharing with me!