COVID-19 fears

How is everyone dealing/feeling about the current pandemic we are dealing with? I just worry about my health and if my medicine will still be available if things to worsen.

Hi @emyy01 Emily and welcome to TypeOneNation. Honestly, I’ve been only going out when necessary, and since work has suspended travel I don’t need to go anywhere anyway. I try not to panic because that never ever helped me or solved any problems. Anxiety is a problem for me so I exercise. Have faith that critical supply will be maintained and do your best not to expose yourself to unnecessary risk, which right now appears to be if you limit your exposure to coughing and sneezing people.

The JDRF response page is here: https://www.jdrf.org/coronavirus/

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Having been a type 1 for 60 years, I have been through many flu/cold seasons and survived. I do everything I can to avoid hospitalization because I have worked in a few hospitals and know how little some providers know about T1 DM. I fear their mistakes almost as much as I do the virus. Although I am following all the recommended precautions, my husband is a plumber and has continued to take care of residential emergencies, so I fear what he may bring home. He says he is following the rules, too. In general this virus has forced everyone to make a major lifestyle change. So be it. Take care everyone!

@emyy01 Hi Emily and welcome to the JDRF TypeOneNation Forum! I hope that you will find answers, and some comfort, from others like you who are trying to live well with diabetes. Very good information for people with diabetes is posted, and up-dated, on our parent-webpage, jdrf.org https://www.jdrf.org/

For me, my “actions” to avoid being infected by this virus, is the recommended “social distancing”. Being a social-being, this can be trying. Other than on on-line volunteering, I have finally decided to put-aside my other volunteer activities until a sufficient time after the “all-clear” is sounded.

Yes, it is very wise for you to be concerned, and follow recommendations.

As for Insulin and other medical supplies, I am NOT concerned. All major insulin manufacturers have published notices that supplies are plentiful and that there is not any reason to suspect interruption in manufacture. I’ve received direct email from my pump and sensor suppliers and manufacturers that there will not be interruption in delivery.

When it first started I noticed my blood sugars were high for days. Then we realized that it was probably me stressing from this pandemic. My family has definitely helped me calm down and I have gotten my bg back in control. I do have a lot of anxiety but I really hope this virus will be over soon. My parents ordered many diabetic supplies just in case so that I have months worth of supplies. I do worry about everyone not getting insulin but I hope it won’t come to that. Stay safe everyone!

I was handling everything pretty well at first. Concerned, but taking a practical, one-day-at-a-time approach. I figured out how long I could last with the supplies I already had, stocked up on sick-day needs (like soup, popsicles, tylenol, etc), and went on with my life as best as any of us can right now. But I’m getting more and more worried the longer this lasts, particularly because I’ve been trying to get in touch with my doctor and haven’t heard a peep from her.

I started using the Omnipod in February and right as MA was shutting down I noticed a pattern of high blood sugars on Day 3 of each pod. I spent most of a day on the phone with a nurse at the Joslin Center (about 2 weeks ago, now) and we decided that I should switch out the pods every 2 days, but my script is for 10 pods/month, not 15. She mentioned that my doctor wasn’t there because almost everyone was working from home but that she’d send a note to ask her to write a new script. A week later I wrote to my doctor myself because I never got a confirmation and I’m worried about running out of pods, but I still haven’t gotten a response. I’m going to try calling Joslin on Monday, but it worries me that I haven’t gotten any e-mails from them about what to do for prescriptions or my upcoming appointment (April 6th). I’ve gotten e-mails from everyone and his uncle about how they’re coping and protecting their staff and stuff. But nothing from the hospital that’s been treating me for 25 years?!?!?

I can feel myself getting more anxious as I write this. The rational part of me knows that I have a decent supply of syringes and Lantus and a few unfilled prescriptions for each, I think, so it’s not the end of the world if I have to switch back. But it’s been such a roller coaster learning how to use the pod; I don’t want to have to start all over.

I’m so tired of being scared, of feeling like I’m in a different category than others. It’s starting to take a toll mentally. I’ve remained covid free so far b/c I’ve been so careful, but when can I go back to the world outside my home? How careful do I need to be? Am I being overly paranoid? I feel guilty about asking to remain remote at work and hate asking for special accommodations, but I also need to accept the reality of being a 50 year old woman with type one diabetes…can anyone relate? Should I just suck it up and return to the office full time or should I continue to ask for accommodations? All my life people have told me I could do anything my friends could-T1D would not hold me back, but here it is holding me back, right? Please share your thoughts with me.

FWIW I’m a little more than 10 years older than you. I haf a mild case of COVID last spring and thankfully recovered at home. I had virtually no appetite and CIQ did its thing so I had and blood sugars the entire time. I got both Pfizer doses as soon as I was able and am sure did my booster in a couple of weeks - I just scheduled it over the weekend. I’m home a lot and go out mainly for groceries and to go to the gym. I wear a mask when I’m in public spaces indoors and continue to do the 20 mine hand wash when I get home. There are no guarantees in life - I could get hit by a car crossing the street so I do as much as I can do to be careful.
There was a snowstorm in the northeast yesterday and people were stuck on I95 for 20-some hours the last I heard, with no access to food, water, or restrooms. I always pack a stash of food and beverages when I travel but I would have been more concerned about that than COVID.
PS - I’ve had Type1 for nearly 60 years.

@amymercer I’m in the same boat as you, emotionally…It’s been an exhausting 2 years. I don’t have any particular advice, other than the obvious (get vaccinated and the booster) and be diligent but I wish I had more for you, or myself… :slight_smile: Mostly I just wanted to reach out and say that you weren’t alone in your feelings. All the best.

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Thank you so much! That’s exactly what I needed to hear. It’s helps knowing we are not alone….

Hi Amy @amymercer. I understand your fear. I spent part of 2020 as a hermit because I am not able to wear a mask due to anxiety. It was very demoralizing.

I am 47 years old and Covid ran through my home last spring. I had a weird headache and a fever of 100.4 in the evenings. A week into it, I lost my sense of smell. I did have to increase my basal insulin by 5 units. I think my daily outside walks in the fresh air and vitamin D supplement helped a lot. This new variant is more transmissible, but not as dangerous. Stats from South Africa claim up to 80% fewer hospitalizations than other variants. It will be ok. :slightly_smiling_face:

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Hi Amy, I read your post and I’m not sure I have any advice but wanted to say I know I can certainly relate to your fear, and being sick of the fear! I am also 50 years old, and the mother of two teenagers. My 13 year old son has T1D (diagnosed April 2021) and thankfully my 14 year old daughter does not! Sometimes the fear is overwhelming, especially when I dwell on the potential risk of exposure at school. I rely strongly on my faith during the times it gets overwhelming, and remind myself both my kids are vaccinated. I took both for the booster shot yesterday, but my daughter flat out refused to get one because she said she was afraid of future side effects. I am so over the masking and everything else associated with this pandemic! I can barely stand to hear the words social distancing and quarantine, and pray we will see an end to it soon. My mother is 73 and has COPD. She is also fully vaccinated, but she is afraid to leave her house, because if she did get Covid, with COPD, she might not recover. She needs new eyeglasses, if not cataract surgery. She needs new dentures, and has stopped going to her PCP, all because she is afraid she would be exposed to this virus. I have tried everything I can think of to persuade her, including trying a telehealth visit, but she is…and I say this with love…quiet the stubborn woman.
My point to all this is be very careful to not allow the fear to consume you. Reach out for someone to talk to, this forum is an excellent way to do that. Living in constant fear and all this social distancing could lead to worse problems like depression and isolation. I will keep you and all T1d families in my prayers!

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Hi @WarriorMom13 . My mom passed away a few years ago at 94 years of age. She was able to get around, but with difficulty, and at one point - I believe it was during a hospitalization - arrangements are made for her to receive house calls. I didn’t know those even existed anymore! It was a blessing for me as I took her to medical appointments, and having a primary care doctor and certain specialists come here was much easier on everyone.
A friend of mine is a nurse practitioner who just started her own practice, and she comes to the patient’s home. You might check with your mom’s doctor to see if those type of services are available, assuming she would be amenable to them.
Blessings to you and your family.
If I might ask, how did your son’s booster go? I get mine in about a week.

Hi thank you for the info…a not sure if my mom would be accepting to a nurse visiting her…she’s convinced herself she doesn’t need her medications now, but I will work on a strategic plan to mention the idea.
So far, so good on the booster…he just got it late yesterday, so it may be too early to tell. School is out for today due to expected weather so he’s sleeping now. I’ve had my third and my arm was a little more sore than with the first two, and took longer for it to stop being sore, but other than that no issues.
I wish you luck with yours. I definitely believe they work…my director was the only one in her household to receive the vaccines, and everyone in her house got covid except her. She’s a former and still licensed registered nurse, and was caring for her family within close contact, but still didn’t get sick.

Oh and one more note…about two hours after the booster his BG was at 68, however I tend to think this was because we were late eating dinner, rather than from the vaccine…since it was a slow and steady decrease.
I’ll try to give an update later as to how he’s doing with it.

I think stubbornness in an aging parent is a good thing - it’s a sign of spirit. A very frustrating one for the “kids” who are caring for them though. But I guess it’s turnaround from our childhood - mine at least, as I can’t speak for you. God bless you and your family, and all the best for 2022.

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Continuing the discussion from COVID-19 fears:

Wow, Amy. Thanks so much for putting this into words. I’m 51 and have had T1D for 21 years. I’ve always strived to not let it limit me, and thanks to a pump and now GCM technology that’s been pretty much possible. Lots of my colleagues and acquaintances don’t even know that I have diabetes. I don’t particularly hide it, but there was never any reason for them to know. But now with COVID I definitely feel like I’m in a different category, suddenly the ‘other’ of society that falls nebulously within the ‘people with underlying conditions’ risk group (despite our exclusion from the early vaccination eligibility…). Despite having family, friends and colleagues who support my strategies for hunkering down - and feeling very fortunate in that - it does wear you down a bit. Thanks for saying it out loud. You are not alone!

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Yes, thank you Kristin! You totally get it. It’s not so much that I’m afraid getting sick, it’s being placed in the “Vulnerable” category which is necessary, but also hard. It’s years of living with an invisible illness until COVID made it visible. It really helps to know I’m not alone.

Thank you! It’s so helpful to be reminded that I’m not alone from people who get it! I appreciate your kind words, I tend to overthink things and have struggled with depression in the past. Venting helps :wink:

I was scared, almost as much as the rest of my immediate family was scared to visit us. Nobody wants to get husband/daddy/grandpa sick. I’m almost 10 years older than you and almost 40 yrs T1 with a relatively good ac1 and time-in-range…
I have a job where I have to go to customer businesses so I couldn’t stay home.
We avoided covid till October '21. My wife brought it home and I purposely didn’t take any precautions when she did. The whole thing has been exhausting and I was done. Thankfully we both had mild cases as did almost everyone know. We did throw the kitchen sink of things available to us at it. Either way, I would have been ok with the outcome. Maybe not my wife though…
From that point forward we agreed and have been transitioning back to a normal life. We don’t take any precautions that we weren’t using pre-covid. I STILL have an occasional anxious moment but regret nothing about any decisions we’ve made. We’ve traveled and gathered as we were used to doing. It is very liberating and I can’t live in relative isolation. We were never meant to live in isolation. Since I have no idea of my expiration date, I’ve elected to fully live again as much as possible. T1 has always limited me a little and will continue to do so.

For what its worth, my level is risk tolerance may be different than yours. My idea of fun includes scraping the pegs of a motorcycle in a beautiful curved arc…

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