My little man has T1D

Wow that’s an awesome list thanks! Today I can’t get him to eat at least 20 carbs so that I can give him his insulin I’m getting flustered and am running out of ideas!!!

We had to call the dr again his count just kept dropping so I wou constantly ask him eat or drink please and he says mommy I can’t I’m feeling pukey. So the dr told me to lower his lantis insulin to 2 so I pray to God this helps! I’m so afraid of a low that it ain’t funny.

Awe, my heart goes out to you!! It will get easier. I’m 7mo. in; still plenty of frustrations to be had, but much easier than it was. Your plate is full; you’re tired (it’s like having a newborn again!!) Hubby is stressed and tired, so his BG’s going all over the place too. Try to be patient. And holy cow, I just saw that you work and go to school full time too. Ok, you are NOT super woman, it is a myth that she even exists. We moms tend to do more damage than good by thinking she does exist or allowing outside influences to pressure us into becoming her, and if we just try a little harder… If you need time out, hubby needs to be ok with that, just as you would be ok if he needed a time out. Keep personal time on the books if you have to. And don’t forget to make time to date hubby too! I can’t tell you how many squabbles hubby and I have ended simply by going out and remembering who we are w/o kids the and stress and why we fell in love. If you need to drop something for a time (school, work, etc.), that needs to be ok too. But of course only you two can make those decisions. In the meantime: I struggle with depression, have my whole life. My kids are now old enough to pick up on and think that some of my mean/negative behaviors are ok. Or when I’m really low, they get scared that mommy’s not ok. So we’ve had honest, frank discussions about why I behave that way, why it’s not ok, but why I can’t just NOT do/say those things or snap out of it, and what I AM doing to try and fix it. But until it’s fixed, they need try to be patient with me. And they’ve been amazing! Their understanding and empathy has grown. And if they have similar problems, they now know they are welcome to be open about them too. So, you can have those discussions with your son, at some point, about daddy’s behavior; and he will understand perfectly. Someone’s gotta take the lead on treatment/appointments. And it looks like it’s you, which is why hubby needs to try and be patient with your learning curve. But also, be open to his input; he can be a valuable resource. How old is your son? I’m guessing much younger than 12/13. Which is another reason hubby needs to understand why you need to figure this out with the Dr. Before my daughter’s diagnosis, she was MISERABLE; I was MISERABLE. Since the emotional changes came on much earlier. We had no clue what was going on and were frustrated with each other beyond measure, thought I was going to kill her on many occasions. It was awful! Yeah, I wish she didn’t have T1; it’s hard. But for us, what a blessing her diagnosis has been!!! She can feel healthy again!!! She can have fun when we go to the beach instead of just laying on shore the whole time. We can stop the constant fighting! If we start butting heads, I know how to deal with it 100x better than I did 7 months ago. What a blessing! And what an amazing age in which to be diagnosed, when there are such wonderful technological advances to help, and more on the way. JDRF is a great place to point your family to teach them about T1, and will give them specific medical advances to pray for, which are in the works. But more than that, in the meantime, they can also pray for you and your family to be able to cope well and find the blessings in this trail. It was still hard, but I certainly felt the prayers of my loved ones when my daughter was in the hospital giving me strength beyond my own.

Jlynn,

Sorry for all drama in your family.

Sounds to me like you are a strong wife and mother with a good head on her shoulders. I think in your husband’s case it’s an issue of pride. Many men who have been treating themselves for years loose touch with the reality that the treatment of a diabetes has changed drastically in the past 20 yrs. New technology in BG control has been an incredible dream come true. From pumps to CGMs to the soon to be delivered Artificial pancreas !

Have your Husband join you and your son for as many Dr appointments as he’ll agree to and maybe he’ll get on board. Seems like he would want the best for the whole family and not push the " my way or the highway" tude.

Be strong and be well,

w. bryan

Thanks for your support I would love it if my husband would go with me to these classes but he won’t he says that they are “bs” and dumb. So I have to be strong for my little man and take him and show him that they are important and do what they say to do. By the way my baby who’s name is keith, he was diagnosed on march 20th and turned six on march 26th. I am kind of looking forward to the camp for him this summer because it gives keith and I a brake from each other but my husband and inlaws are dead set against it because keith is to young they say to go for a full week even though this is what the camp is for. IT DRIVES ME NUTS!!! I will probably end up loosing and he will probably end up staying home with me like normal!!!

Hi Jlynn83,

Six is a great age to go to camp. Perhaps if you tell your family that you’ve read up on Camp and that lots of young boys do really well. My son always went for 2 weeks for many years - it was never a problem and he thrived among the staff and the friends he made while there. In our experience the camp staff was excellent, well-trained, and many of the counselors also had T1D; so they REALLY knew the deal !

The counselors make wonderful role models outside the family which is also great for young children as their minds continue to grow with new experiences and new friends.

Keith may need a break too !!! :wink:

Good luck,

Yea!!! Yesterday my baby ate three full meals plus Im so glad! The first time in a full week that he has ate since being ill. Im so glad its exciting with these little things!!!