I was NOT told that diabetes is a 24/7 disease. I was 12 when I was diagnosed, so I assumed, like with most hospital visits, I was there to get fixed by a doctor and when I went home everything would be okay. Boy was I wrong...
Haha, this has actually made me realize I've become a bit caught up the in the current media flare and have been thinking to myself "you know... a cure may only be a decade away". It appears this is a constantly perpetuating myth!
I was also told, "We have come along ways, and there will be a cure in 5 years!" But Guess what!!! It's been almost 17 years!! I think its what they are "trained" to tell us to give newly diagnosed diabetes hope or something lol
When I was DX in 2007, the doctors told me that as long as I do as they told me to do, I would be cured in 5 years. They had misdiagnosed me as having type 2. A year later I was on insulin with a clear type 1 diagnosis. Wake me up when the 5 years are up lol
I don't think I was ever told this, but it was so long ago (1977) that maybe I was and just don't remember. I hold out ZERO hope for a cure in my lifetime and I'm good with that.
[quote user="DDrumminMan"]
I don't think I was ever told this, but it was so long ago (1977) that maybe I was and just don't remember. I hold out ZERO hope for a cure in my lifetime and I'm good with that.
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I don't believe there will ever be a cure either. For any major disease- not just diabetes. What would happen to all the major pharmaceutical companies if all of a sudden there was a cure. Not happening.
[quote user="Lindsay"]
[quote user="DDrumminMan"]
I hold out ZERO hope for a cure in my lifetime and I'm good with that.
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I don't believe there will ever be a cure either. For any major disease- not just diabetes. What would happen to all the major pharmaceutical companies if all of a sudden there was a cure. Not happening.
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I agree 100% with the both of you.
I've never been told about a cure in any amount of time since being dxed (5.5 years ago), I think it would be awesome if there was a cure developed in my life time but I don't think about it or expect it. I just deal with it and do my best to manage myself.
my son was dxd 9/1/2010...they told us...5 years :(
I heard the exact same thing "There'll be a cure in 5 years"....yep, that was 10 years ago!! Maybe one day...
My daughter was dx on Nov 1, 2010. The doctor was realistic and told my husband and I that more than likely Emily would see major advancements in the treatment and possible cure in her lifetime(she is 7 years old) and definitely not during his lifetime (he's 60ish).
Jenn
I've never heard anything from my docs about a cure. Maybe it's because I'm in the health field and know better. I do hope they find one in my lifetime, but I have accepted they probably won't : (
I've never heard of a cure either. Actually, when I was first diagnosed the endocrin I was sent to actually told me I was "lucky" to be diagnosed now and not 70 years ago, because I'd probably already be dead! Wow, thanks! That was back in 1998. He also told me I needed to listen to him or I'd be getting my leg chopped off soon! Needless to say that was the first and last time I saw him.
Friends and family used to send me newspaper and magazine clippings about possible miracle cures. I finally had enough and said "thanks everyone but please stop doing this." It gets to a point where you have heard enough about it. Maybe its my pessimistic attitude, but for me, it has become easier to cope with D if I just accept that this is a lifetime thing.
I was told in July that if I was lucky I would see a cure in 20 to 30 years. It didn't make me feel to great but it is realistic. Hopefully it doesn't take that long though. Although as long as I see a cure before I die I will be happy because then I know that children out there won't have to deal with it anymore.
I was told exactly the same :D.I don't know if its the case in other parts of the world or not but in Turkey the general saying was closer to this nonchanging and exact form " There is a cure , it will take ... years(fill in the blanks) for the general public to use it as it is being tested by FDA right now" :D:D . Funny thing is that I believe I witnessed the evaluation of the instruments that are used for diabetes within this waiting period.First , there was the mighty needle .Then they shortened its size and called it "the insulin pen".Also there was the weird non-needled, pink and high pressured insulin injector which gave you purple circles in your skin . Glucometers also changed drastically with time . Also humalog came in by the way.Laser replaced the poignant . Also can not forget what a failure the first glucowatch was:D.These happend along with growing old.Starting from preschool and continuing still with masters degree and work.My doctor is still insisting that the cure is about to come in 5 years:D
My Uncle is on the board of JDRF and they are inventing an artificial pancrease (sorry I know i spelled that wrong) and it should be out in an amount of years.
here is a question to those that have been doing it for soo long if you had a cure would anything you do as a daily habit change? take for example the first thing i do when i wake up is grab me a needle and take me long acting, then check myself and go about my day. or having the urge to know exactly what your blood sugar is; could you break the habits of testing that we have built into an intrical part of our diabetes lives.
do you think you would honestly be able to break the habits we have taught ourselves over the years to maintain our health or what may be of it?? and what habits have you made to seamlessly sew this disease into our fabric of life so much they become second nature and with out cohereant thought.??
[quote user="jeremiah81"]
here is a question to those that have been doing it for soo long if you had a cure would anything you do as a daily habit change? take for example the first thing i do when i wake up is grab me a needle and take me long acting, then check myself and go about my day. or having the urge to know exactly what your blood sugar is; could you break the habits of testing that we have built into an intrical part of our diabetes lives.
do you think you would honestly be able to break the habits we have taught ourselves over the years to maintain our health or what may be of it?? and what habits have you made to seamlessly sew this disease into our fabric of life so much they become second nature and with out cohereant thought.??
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First, don't forget there will be a significant time period between when the cure is announced and when you finally get it. You will have to continue to treat yourself, just so you can live until the cure gets to you. But if I no longer have a pump attached to me, it won't be there when I reach for it to deliver a bolus, and that will remind me that I don't need it any more. It won't hurt to do an occasional BG test, and I think that habit will just gradually die, because of curiosity. Eating 3 meals a day is a good habit anyway, and shouldn't be broken. I had been doing shots for 52 years before I switched to a pump, 15 years ago. It didn't take very long to get out of the habit of taking shots. I really hope to see the day, but at my age (78) it's not very likely I will get to see it. So I hope the rest of you will enjoy it for me!
Actually when my son was diagnosed last year the doctor said " You are diabetic and you will be on insulin for the rest of your life." In my mind that statement should be revised to " you have type one diabetes and will need to be on insulin until a cure is found". Just my perspective.