good days, bad days with t1d, my anxiety and stress are very high, I do not understand how my son has very good days, and only starts to have sugar highs, mentally for a mother is very tired , just take a little air and move on, I need other mothers who understand me:disappointed_relieved:
I stress out about my daughter everyday. She has had diabetes for a little over two years now and her blood sugar levels are still all over the place. She has a CGM which puts my mind at some ease, but now I find that I am constantly looking at my phone to see her levels. She goes either high or low at night so every night I am either giving her juice or insulin. Sleep is nonexistent but I try to stay positive and keep my head up. As tired and stressed out as I am about my child, I canāt imagine what she goes through every day! Keep your head up and try to stay positive!
I have days, good positive, but I have days where my mind, can not anymore, I do not sleep quietly at night, for fear that your sugar will go down, and I will be asleep, I have anxiety, panic attacks, to think that, something will happen to me and what would happen to my sonās life, my son is 8 years old, it depends on me at 100
El El jue, dic. 20, 2018 a las 9:09 a. m., Marybeth jdrf@discoursemail.com escribiĆ³:
I certainly hear you Yanine @yanine_30. Although I am neither a mother nor a parent of a child with T1D [thankfully none of my children or grandchildren have diabetes], I may be able to offer you some understanding. Living with diabetes can be filled with stress and anxiety that can, and often does, spread to the entire family - Iām now in my 7th decade living with my diabetes.
In recent years, some of my siblings - I was one of eight - have shared with me how they did ālittleā things for me, without letting me know, trying to make my life better; and the worry they carried. In the days when I was diagnosed, a child diagnosed with diabetes was not expected to live to be an adult - my sisters and brothers kew this but [thankfully] no one told me. Times, insulin formulations and aids have changed and T1D will NOT prevent your son from living a full, active and productive life. I suspect that your son may feel some anxiety or guilt because he has diabetes and that HIS condition may be causing you and the rest of the family to alter lifestyle or activity - do what you can to recognize this and let him know otherwise - in other words, treat him just like his brothers and sisters.
Now to talk about those days when his āsugar levelsā appear to be way out of wack. That is the very nature of T1D and there very little that can be done to prevent this - there is a published list of āForty Two things that affect Blood Sugarā and food, activity and insulin are only three of those items. More often than not, when your sonās BG Level is ālowā the cause is additional activity, less carb intake [or incorrect carb counting] or just the human body refusing to act like a robot. Running āhighā could also have to do with carb counting, stress, infection and many other little things - the real norm in living with diabetes is that there is NOT a normal. Accept a BG reading that is out of rang and use that information to make adjustments.
Too, please try not to label your sonās diabetes as either good or bad - both those words convey guilt, especially to the young. Try instead to incorporate into everyday use the terms āin rangeā, ābelow rangeā or āabove rangeā; these three terms have meaning specific and positive to Diabetes Management without reflection on behavior.
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Yanine, best wishes for strength and comfort for you and your son from another tired mom!
Dennis, thank you for your wisdom of 7 decades! I like your suggestion of using āin range,ā ābelow range,ā and āabove range.ā In these first few months of learning to cope, I found myself reacting to the readings with either fear or celebration and realized that this was affecting my daughterās perception. Now, Iām working on viewing the glucose readings as gathering data for the endocrinologist to make dosage decisions, which I rest assured that he does well.
Thank you for your words Cathleen @cminer.
And by all means, CELEBRATE; yes, let your daughter celebrate even her ālittleā achievements. I know that I still celebrate when I look at my display of glucose levels and I see that I have been mostly āin rangeā for a few days.
Keep in mind, that diabetes experts set the āin rangeā at 70 to 180 mg/dl and note that children will very often have more fluctuation and very often will have a higher ānormalā; something to do with the size of their bodies and metabolism rates.
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I understand you completely. I am a mother whom all three of my children have type one diabetes. There are days that I would live to just get away. Days that I canāt believe this is our life. But it does get better. Things start to flow better. You start to worry less. Get a little more sleep.
Some nights I oversleep a check and it scares me but noone is perfect. But you become more in tune with your childās numbers and you learn when to give a little less insulin or a little more by what they eatā¦activity level. ā¦or if they are sick.
My three kids are all 10 years apart. The first was 17 when diagnosed. The second was 16 months. And the third was 13 but was also my child born with severe allergies and asthma. So I understand how hard it can be and sometimes just having someone to talk to and vent to is a blessing. Just hang in there and know that you are enough and you are exactly who your child needs. And just find what I call ā¦your new normal. And try to find something fun to do with your child. Make sure to enjoy your child even when they may make you wanna scream. I hope this helps.
I have good days, bad days, where my mind can not anymore, I feel frustrated, I wonder, because my son, because I sleep with the fear of falling asleep, my instinct wakes me up, of the fear that I have, I do not need alarms, I only read to see that your sugar is fine, I am alone with all this, sometimes I would run and not return, but I remember that my 2 children, only have me, and I return to reality, talking to people with children, ānormalā does not work, just say, so small and already have diabetes, siest mastima for him, and that does not work in my life, talk to girls as you, help me 100 !! ā¦
El El jue, dic. 27, 2018 a las 8:23 a. m., Susan jdrf@discoursemail.com escribiĆ³: