I 1000% agree with you. There is a female endo I was trying to get my daughter in with but she was booked out very far when I needed her to get in. Now that she’s had an appt with her current endo I am considering making an appt with the female doctor now that shes at least already been seen and somewhat calmed down a tiny bit from the extreme lows
Excellent! I would grab the first appointment I could get, and bug the office now and then to see if anything opens up sooner - you never know🤞🏽. And she’s booked for a while, which could be a positive sign - she may be one of the “up and coming” ones! I’m really glad to hear your daughter had calmed down from her lows.
From what I’ve seen the past 4 days she goes low because she needs a 2 pm snack and of she doesnt get it she goes low . The humalog drops her really bad 4.5 hrs after injection
I believe the doctor based his recommendations based on the particular basil insulin she was on. She was needing the peak to perform in the morning because that’s when she was running high.
And that’s my daughter issue a spike between 3 and 7 am that wont go away
I agree with Dorie. Continue to pursue an appointment with the new endo no matter how long it takes and have her office put your daughter on a stand by list for cancellations. There are so many insulins out now that your daughter may need to be on another one to get issues under control. Be sure to keep a journal of the spikes and lows, times of injections, time duration of spikes and lows, BGL levels, etc. This will help the new endo to identify patterns and come up with a customized plan. Keep fighting T1D warrior pricesses mama, you’ll get this fixed and some day look back and have another story of success to share with your little warrior. Remember when…
Keep in mind @stixxs512 that Levemir is a “long-acting insulin”, it is not a “background or basal” insulin like Teshiba or Lantus. The charavctyeristics and expected outcome are quite different, and they must be handled differently.
In answer to your earlier question, it is very acceptable and preferable for it to be administered in the morning; the evening dosing is something new that came about with providers tryig to make long-acting mimic background insulin. For at least 20 or 30 years, I and the vast majority of people with diabetes successfully managed diabetes [without constant fear of hypoglycemia] with a single dose of “long-acting” insulin administered in the morning. Don’t get me wrong, MDI intensive management is significantly a preferred diabetes management tool when done correctly.
This is why I like coming to this forum because i
have never been told that levemir isnt a basal. What is the point of having a long acting acting insulin, and short acting insulin instead of a short acting insulin and a background .??? In the beginning of diagnosis she was on lantus and novolog which was wonderful for her for years until she had to be switched to humalog and she complained of stomach issues on humalog lantus combo.
in the 1970s when i assisted in the MDI theory development and algorithm @stixxs512 there had not been any backgound/basal insulin yet developed. We used NPH and Regular. These insulin formulations required much more thought and recall memory function,but the experiment was successful and was foundation for the Worldwide DCCT Study in the 1980s that lead to MDI management now used by the majority of PWD.
I know I’m late to the party, but I just realized: at least some doctors are adamant that they’re different. Back when we were trying to figure out why my daughter was having such trouble with Tandem, one of the things that was suggested was that she’s on Humalog, and the Tandem has only been FDA-approved for Novalog. I don’t know whether that had anything to do with it for us, but several people mentioned it as a possible culprit.
If your daughter did well on Lantus and Novalog, and is having a hard time now, I would ask the endo to write a letter of medical necessity to the insurance company, and see if they’ll make an exception. It’s an awful process, but if it gets her what she needs, then it will be worth it!
I’m seriously considering asking him to put in a prescription for novolog and though my insurance doesnt cover it now, I may pay out of pocket just to see if it helps . If it does going forward with the letter to the insurance
My pharmacist has been very helpful on occasions when the med my doctor prescribed was not my insurance’s preference - they have told me I needed an explanation of medical necessity from my doctor so see if your doctor will write one for you so you can save your money if you can. No, I haven’t forgotten your issues with your doctor, but if he’s willing to give you an rx he might provide a letter as well even if he’s seething as he writes it. While many people may be able to use both Humalog or Novolog with no issues, for some people only one will do. And wouldn’t it be pleasantly ironic if the new one works and he learns something!
2 Likes
Hi @stixxs512 . Haven’t seen you in a few days ago I thought I’d check in to see how things are going. How’s your little warrior doing?
1 Like
That is so nice of you to check in. My daughter is doing better. I started giving her basal dosage in the mornings and for some reason that has definitely improved her numbers through out the day and her night time numbers. I made an appt for her to go to a female pediatric endo it’s not until september because shes booked .
1 Like
Great news! I’m so happy you figured out something that worked! Great news too about the appointment with the female doctor next month. I just realized we’re nearly halfway through August so it’ll be here before we know it. How did she feel about returning to school - or starting back even if not in a classroom? My local Target had been packed with back to school shoppers and the kids seem excited.
1 Like
Shes excited to see her friends but she doesnt want to go back because shes scared about covid . If I’m honest I’m scared as well
I understand. I had a mild case of COVID a few months ago and recovered at home with no continuing problems, but the Delta variant of a new animal. We’re hearing a lot on the news about reactions to mask mandates in some parts of the country, but I haven’t heard much from the front line medical people such as school nurses. Maybe yours can give you some guidance on what you and your daughter can do to increase her safety in her school. Maybe I’m mistaken but knowing the ins and outs of your particular environment (micro level) can be more helpful than the broader advice given by those looking at the macro level, even if the latter is good. I hope that makes sense.
BTW, did you find out yet if there are any other Type1 kids at her school? Just curious.
1 Like
She starts in a few weeks so i will definitely be talking to the nurse the week the staff goes back. The nurse is incredible so I know she will give me some insight. I haven’t talked to her yet so I’m not sure about other type 1 kids at the school
One thought - if you’re able to talk to the nurse sooner and share your info with any other Type1 kids - and parents😊 - it would give you time to connect before the official insanity of the first day back.
1 Like
My daughter started school shes very happy but has been feeling like crap everyday. Sugars are high. Appt with new endo on sep 7th. Adjusted her humalog so many times it lowers her for 1 hr then she shoots up. 200s and 300s is where shes staying.levemir dosage has been increased . I’m ready to see this new doctor.